Part I: What Is the Requirement for Data Sharing?

TitlePart I: What Is the Requirement for Data Sharing?
Publication TypeJournal Article
Year of Publication2005
Authorsde Wolf, VA, Sieber, JE, Steel, PM, Zarate, AO
JournalIRB: Ethics & Human Research
Type of ArticleArticle
Publication Languageeng
ISSN Number01937758
Accession Number19384903
KeywordsFederal , HEALTH , Medical , research , United
AbstractThe article discusses requirements, rules and procedures for data sharing. As of October 1, 2003, the National Institutes of Health requires all proposals for grants with direct costs greater than $500,000 in any single year to specify plans for sharing research data or explain why data sharing is not possible. The Department of Health and Human Services in accordance with provisions of the Health Insurance Portability and Accountability Act of 1996 issued privacy rule which permits research use of individually identifiable health information.
Notesde Wolf, Virginia A. Sieber, Joan E. 1 Steel, Philip M. 2 Zarate, Alvan O. 3; Affiliation: 1: Professor of Psychology, Emerita, California State University East Bay, Hayward, CA. 2: Disclosure Avoidance Staff Member, United States Census Bureau, Washington, DC. 3: Confidentiality Officer, National Center for Health Statistics, Hyattsville, MD.; Source Info: Nov/Dec2005, Vol. 27 Issue 6, p12; Subject Term: MEDICAL informatics; Subject Term: MEDICAL care; Subject Term: RESEARCH; Subject Term: HEALTH insurance -- Law & legislation; Subject Term: FEDERAL aid to medical research; Subject Term: UNITED States; Company/Entity: UNITED States. Dept. of Health & Human Services; NAICS/Industry Codes: 923120 Administration of Public Health Programs; Number of Pages: 5p; Document Type: Article
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