Biotech innovations and fundamental rights

TitleBiotech innovations and fundamental rights
Publication TypeBook
Year of Publication2012
AuthorsBin, R, Lorenzon, S, Lucchi, N
Pagination1 online resource (ix, 353 p.)
Place PublishedMilan ; New York
Publication Languageeng
ISBN Number8847020328 (electronic bk.)
Accession Number6878828
KeywordsBIOENGINEERING , BIOETHICS , Biological , Biomedical , biomedical engineering , Human , HUMAN rights , Intellectual , Intellectual Property and Patents , research
AbstractBiotechnology is a recognized research area that has increasingly advanced into new technologies and modern practices raising several legal, ethical and regulatory issues. The revolutionary speed of biotech innovations has had a significant impact on the protection of the rights of the individual. Fundamental rights provide a framework within which the justification of limitations and restrictions to biotechnology innovations and research results have to be assessed. The legal regulation of scientific research and scientific investigations impact more and more directly on the freedom of research and therapies as well as on the broad diffusion of knowledge. Closely related is also the debated question of the technological manipulation of life and the boundary of scientific knowledge with regard to the topical question of genetic invention patents and their side effects on access to scientific information and health care opportunities. Drawing on expertise from different disciplines, the volume comprises invited papers and plenary presentations given at the conference entitled “Biotech Innovations & Fundamental Rights” that took place on Januray 20-21 2011 at the Department of Juridical Sciences of the University of Ferrara. Each contribution covers a different aspect of the legal and scientific issues involved in regulation of biotechnology. In particular the focus of attention has been given to genetic research, genetic data, freedom of scientific research in genetics and biotech patents.
Notes/ Roberto Bin, Sara Lorenzon, Nicola Lucchi, editors.ill.Includes bibliographical references.Introduction / Paolo Veronesi -- The Case against the Privatization of Knowledge : Some Thoughts on the Myriad Genetics Controversy / Giorgio Resta -- Patentability Requirements of Biotech Inventions at the European Patent Office : Ethical Issues / Giovanni Macchia -- The Right to Access the Benefits of Science and Intellectual Property Rights / Aurora Plomer -- "Ownership and Provenance" of Genetic Material in the Rules on Biotechnological Patents / Rosaria Romano -- Biotechnology Patents Norms : Emerging Difficulties / Cecilia Zorzoli -- From the Patentability of Living Matter to the Ethics of Biotechnological Innovation : the Person-Body Relationship / Silvia Zullo -- Issues and Rights in DNA-based Inventions / Nicola Lucchi -- Bioethics and Freedom of Scientific Research in Gene Therapy and Stem Cell Biology / Roberto Gambari and Alessia Finotti -- Freedom of Scientific Researcli in the Field of Genetics / Roberto Bin -- Genetic Testing and Authentication of Paternity after Death of the Putative Father: the Bio-history and Its "Costs" / Giacomo D'Amico -- The Legal Implications of Preimplantation Genetic Diagnosis / llja Richard Pavone -- Preimplantation Diagnosis of the Embryo : Legislative Inflexibility in vitro and Attempts at Greater Flexibility in vivo / Stefano Agosta -- Some Ethical and Regulatory Aspects Involved in Direct-to-Consumer Genetic Testing (DCGT) / Maria Jorqui Azofra -- Adjusting the Individualistic Framework of Protection in Human Genetic Research / Marta Tomasi -- Xenotransplantation and Human Rights / Paola Sobbrio -- Pharmacogenetics and Fundamental Rights / Elena Falletti -- Genetic Research and European Integration / Sara Lorenzon -- Genetic Data in Forensic Science : Use, Misuse and Abuse / Guido Barbujani and Francesca Tassi -- Genetic Research and Rights of the People Involved : from an Individual Approach to an Universal Perspective / Elisa Stefanini -- Towards a Genetic Registry Office? / llaria Anna Colussi -- Genetic Data Retention and the Italian Discipline of Acquittal : Database Improvement and the Fundamental Rights of the Individual / Francesco Morelli -- Use of Genetic Data for Research Purposes and Consent : Love or Hate? : A Proposal of Balance Taking Account of the "Specific Weight" of the Single Research / Giulia Vaccari -- The habeas data in the Genetic Research : Intrinsic Limits and Threats from Outside / Monica Alessia Senor -- First Observations on the Right to Development Approach to Informed Consent in Medical and Genetic Research / Lucia Busatta -- Genetic Research and Protection of Individual Rights : a First Approach to the French Model / Elisabetta Pulice -- Access to Genetic Resources in the Practices of States / Andrea Crescenzi.Description based on print version record.*UIUC Online Collection Online Resource Accessible anywhere on campus or with UIUC NetID
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