Vulnerable Populations

Authors: Diaz-Sprague, Raquel ; Association for Practical and Professional Ethics ; Funke, Michael Brian ; Boxall, Susanna Flavia ; Funke, Rhiannon Dodds ; Potthast, Adam ; Myers, Gretchen A.
Publication Type: Case Study
Abstract: The Talvarez family has gone to great lengths to make sure their children get to choose their gender identities free from outside influences. They did not include the gender of their children on birth announcements, named their chil...
Year: 2011
URL: http://ethics.iit.edu/EEL/De-sexing%20Children.pdf

Authors: Baylis, Francoise
Publication Type: Journal Article
Secondary Title: Accountability in Research: Policies & Quality Assurance
Abstract: Focuses on the functions of Institutional Review Boards (IRBs), local research review mechanisms in the United States intended to promote research involving humans that is appropriately respectful of the dignity of subjects and prot...
Year: 1999
DOI: 10.1080/08989629908573951

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: A multi-site study comparing several treatment modalities for children with ADHD using random assignment seeks to ensure fair representation and access to research benefits for minority children given issues of potential overdiagnos...
Year: 1996
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Ensuring-Fair-Representation-of-Minority-Children-in-Research&cntnt01returnid=64

Authors: Hoagwood, Kimberly ; Jensen, Peter S. ; Fisher, Celia B.
Publication Type: Book
Abstract: This book contains chapters on the kinds of ethical dilemmas that typically occur in different types of studies of children, and then presents 65 real-world cases from experts who study children's mental health. These experts offer ...
Year: 1996

Biblio - KBL781 - 2009-11-20 11:11

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: At a residential treatment center for persons with mental retardation, lithium is frequently used to treat aggressive and self-injurious adolescents. However, this use of the drug has never been systematically tested on this populat...
Year: 1996
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Placebo-Trials-with-Prevalent-but-Unproven-Treatments&cntnt01returnid=64

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: Researchers seek a wavier of parental/guardian consent for a study examining psychosocial stressors and anxiety and depressive disorders in gay and lesbian adolescents....
Year: 1996
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Waivers-of-Parental-Permission-for-Research-with-Gay-and-Lesbian&cntnt01returnid=64

Authors: Sieber, Joan E.
Publication Type: Case Study
Abstract: Unanticipated problems arise when a researcher employs community members as interviewers for a survey of black teenage crack users. Sieber presents this as an example of good research practices....
Year: 1992
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Confidentiality-and-Using-Community-Members-as-Interviewers&cntnt01returnid=64

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: Investigators studying the neurological correlates of AIDS in infected children evaluate the risks and benefits to institutionalized child participants...
Year: 1996
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Getting-Consent-to-do-Research-on-Institutionalized-Children&cntnt01returnid=64

Authors: Fisher, Celia B.
Publication Type: Case Study
Abstract: To minimize distress and the potential for distrust of staff, investigators researching aggression in boys with conduct disorder do not disclose the purpose of the low-risk research but rather present the study activities as a game....
Year: 2003
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Making-Everyone-Feel-Like-a-Winner&cntnt01returnid=64

Authors: DuBois, James M. ; Dunn, Angela
Publication Type: Case Study
Abstract: Roger, who was diagnosed with schizophrenia 20 years ago, wants to enroll in an experimental drug study based on the recommendation of his psychiatrist. ...
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=A-Sign-from-the-Heavens&cntnt01returnid=64

Authors: DuBois, James M.
Publication Type: Case Study
Abstract: A psychiatric researcher feels that a research coordinator recruiting patients for drug trials may be giving participants false hope about the experimental treatments being tested....
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=It-s-All-the-Same&cntnt01returnid=64

Authors: Dunn, Angela ; DuBois, James M.
Publication Type: Case Study
Abstract: Mark would like to conduct research for his dissertation at a group home for developmentally disabled persons where he has worked as a social worker for several years. He wants to conduct his dissertation research, and proposes recr...
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Studying-Vulnerable-Individuals&cntnt01returnid=64

Authors: DuBois, James M.
Publication Type: Case Study
Abstract: Dr. Randall has proposed two studies involving children with severe emotional disturbance (SED), one involving a control group and the other random assignment into foster care. Discussion questions ask, based on the details of the p...
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Severe-Emotional-Disturbance-Studies&cntnt01returnid=64

Authors: Keith-Spiegel, Patricia ; Koocher, Gerald P.
Publication Type: Case Study
Abstract: Parents disagree over enrolling their son in a research project using aversive conditioning to eliminate his cocaine addiction....
Year: 1990
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Splitsville&cntnt01returnid=64

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: Although 10-year old Ryan’s parents sign a consent form for participation in a clinical trial for a new drug for ADHD, Ryan refuses to assent....
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Considering-Children-s-Dissent&cntnt01returnid=64

Authors: Koocher, Gerald P. ; Keith-Spiegel, Patricia
Publication Type: Case Study
Abstract: Researchers have the appropriate permissions and assent to observe playground behavior of specific children. Nonstudy children, unaware of the study, are observed only when interacting with study children and are not identified by n...
Year: 1990
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Lack-of-Permission-and-Assent&cntnt01returnid=64

Authors: Keith-Spiegel, Patricia ; Koocher, Gerald P.
Publication Type: Case Study
Abstract: Parents are told that if they enroll their babies in a research project, the babies will receive an EEG to look for signs of brain damage. Babies not enrolled will not receive this diagnostic test....
Year: 1990
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Research-or-Services&cntnt01returnid=64

Authors: Koocher, Gerald P. ; Keith-Spiegel, Patricia
Publication Type: Case Study
Abstract: Teenagers were administered a widely used and standardized self-report depression scale as part of a larger battery of assessments. Ned Blue’s test indicated such an elevated score that the researcher was seriously concerned about t...
Year: 1990
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Too-Blue&cntnt01returnid=64

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: An institutional review board reviews a study that aims to develop a screening program to identify adolescents at risk for suicide....
Year: 1996
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Reporting-Findings-of-Adolescent-Mental-Health-Issues-Discovered&cntnt01returnid=64

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: Researchers assessing the service needs of juvenile detainees request a waiver of parental permission....
Year: 1996
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Issues-of-Informed-Consent-for-Research-with-Juvenile-Detainees&cntnt01returnid=64

Authors: Fisher, Celia B.
Publication Type: Case Study
Abstract: Fearing that parents of children who are in the control group of a school-based substance abuse intervention study will feel slighted, a researcher does not mention the intervention– only the questionnaire – in the control group par...
Year: 2003
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Full-Disclosure-Use-of-Control-Groups-in-Behavioral-Interventio&cntnt01returnid=64

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: You are clinical psychologist who has developed an intensive outpatient intervention targeting suicidal young adults. At your institution, treatment-as-usual includes a combination of short- or long-term hospitalization employing in...
Year: 1996
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Accruing-Patients-for-a-Problem-Solving-Intervention-for-Suicida&cntnt01returnid=64

Authors: Slomka, Jacquelyn
Publication Type: Journal Article
Secondary Title: Science & Engineering Ethics
Abstract: The author discusses the ethical issues raised in the use use of foster children as subjects in the pediatric HIV/AIDS clinical trials, and discusses the unsettled issues and debates in research ethics underlying this controversy, ...
Year: 2009
DOI: 10.1007/s11948-009-9179-5

Authors: American Sociological Association
Publication Type: Case Study
Abstract: A researcher looking at the re-integration of individuals released from long term mental health care facilities in a study sponsored by the state government realizes partway through the study that many of the participants are not aw...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case52

Authors: American Sociological Association
Publication Type: Case Study
Abstract: A state health agency has asked Dr. Maggiano to assist in setting up a database to monitor health risk behaviors among pregnant women, with a special emphasis to include data from low-income pregnant women. When the Tribal Council ...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case51