Informed Consent

Authors: Kodish, Eric
Publication Type: Case Study
Abstract: A scenario that covers ethical issues that arise when children are reluctant to continue participation in research studies....
Year: 2000
URL: http://www.onlineethics.org/CMS/2963/modindex/resethpages/conobl2.aspx

Authors: Murray, Thomas H.
Publication Type: Case Study
Abstract: Should donors of human biological material for research be told of the potential profits companies and researchers may gain from this research?...
Year: 2006
URL: http://www.onlineethics.org/CMS/2963/modindex/resethpages/commercialization.aspx

Authors: Whittaker, Peter ; Santos, Heloisa G. dos ; Sakaguchi, Donald ; Pareja, Enrique ; Gouvenia, Maria M. C.
Publication Type: Case Study
Abstract: Mr. and Mrs. Smith went through in vitro fertilization a number of years ago and had a number of viable embryos kept frozen at their local hospital. A year later, both of the Smiths were killed in an automobile accident. Now, a re...
Year: 2004
URL: http://www.bioethics.iastate.edu/classroom/orphanembryos.html

Authors: Appelbaum, PS ; Winslade, William J. ; Lidz, CW ; Roth, LH ; Benson, P
Publication Type: Journal Article
Secondary Title: Hastings Cent Report
Abstract: The author discusses some of the ethical issues that arise in clinical trials when a randomized, double-blind trial is being run for general knowledge about the treatments, but human participants believe they will personally benefit...
Year: 1987
URL: http://k30.im.wustl.edu/ethics/week3/Applebaum_therapeutic_misconception.pdf

Authors: Korenman, Stanley G. ; Shipp, Allan C.
Publication Type: Case Study
Abstract: Case poses questions regarding the recruitment of subjects with Alzheimer`s to test a drug with possible side effects, some of which can be serious....
Year: 1994
URL: http://www.research.umn.edu/ethics/pdf/InformedConsent.htm

Authors: Pentz, RD ; Kodish, ED ; Ruccione, K ; Buckley, J ; Noll, RB ; Lange, BJ
Publication Type: Journal Article
Secondary Title: Cancer
Abstract: The authors of this article studied the informed consent process and parents' and physicians reactions to this process at Children's Cancer Centers around the United States. Of parents interviewed about the informed consensus proje...
Year: 1998
URL: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=9635541
DOI: 10.1002/(SICI)1097-0142(19980615)82

Authors: Emanuel, Ezekiel J.
Publication Type: Book
Abstract: A collection of essays including the following: U.S. medical researchers, the Nuremberg doctors trial, and the Nuremberg Code: a review of findings of the Advisory Committee on Human Radiation Experiments -- The Jewish Chronic Dise...
Year: 2003

Biblio - KBL781 - 2009-10-08 14:09

Authors: Lee, Melinda
Publication Type: Case Study
Abstract: A doctor must decide if a patient's decision to stop dialysis is motivated by depression....
Year: 1997
URL: http://www.scu.edu/ethics/dialogue/candc/cases/patient.html

Authors: Cirone, Chris
Publication Type: Case Study
Abstract: A selection of medical ethics cases designed to bring up ethical issues in the field if medicine and help students determine whether medicine is the correct calling for them....
Year: 2001
URL: http://www.scu.edu/ethics/publications/submitted/cirone/medical-ethics.html

Authors: Stanford Biodesign, Stanford University
Publication Type: Case Study
Abstract: A student in biodesign with a Ph.D in Mechanical Engineering has received the patient's consent to be in the operating room and observe a cardiovascular surgical procedure. When one of the assisting physicians leaves the room, anoth...
Year: 2007
URL: http://biodesign.stanford.edu/bdn/ethicscases/3conscientioustudent.jsp

Authors: DuBois, James M.
Publication Type: Case Study
Abstract: In the early 1960’s, Stanley Milgram used deception to recruit subjects for a psychology experiment. Subjects were told that the research concerned the effect of punishment on learning, when in fact it studied obedience to authorit...
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Milgram-s-Obedience-Studies&cntnt01returnid=64

Authors: DuBois, James M.
Publication Type: Case Study
Abstract: From 1956 through 1971, residents at the Willowbrook State School for Children with Mental Retardation were infected with live hepatitis in order to develop a vaccine. Parents gave permission for their children to participate in thi...
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Hepatitis-Studies-at-the-Willowbrook-State-School-for-Children&cntnt01returnid=64

Authors: Fisher, Celia B.
Publication Type: Case Study
Abstract: The case discusses a research team conducting a study on HIV-related risk behaviors in community-dwelling adults with substance abuse disorders, and how the researchers develop creative ways to evaluate the consent of participants w...
Year: 2003
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Potential-Inability-to-Provide-Informed-Consent-Due-to-Substance&cntnt01returnid=64

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: A researcher conducts a non-therapeutic study with young adults with Tourette’s Syndrome and their families. The participants’ perceptions of risks and benefits differ from those of the researcher....
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Differing-Perceptions-of-Risks-and-Benefits&cntnt01returnid=64

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: As principal investigator of a study on Mexican-American women and postpartum depression, you learn that many potential study participants want to discuss the study with their husbands before signing a consent form. ...
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Family-Involvement-in-Informed-Consent&cntnt01returnid=64

Authors: DuBois, James M.
Publication Type: Case Study
Abstract: From 1932 through 1972, the U.S. Public Health Service enrolled African-American men in a non-therapeutic research study to observe the natural course of syphilis. Subjects were not told they had syphilis, nor were they treated for ...
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=The-Tuskegee-Syphilis-Study&cntnt01returnid=64

Authors: DuBois, James M.
Publication Type: Case Study
Abstract: A researcher on a Institutional Review Board recommends additional protections for participants in clinical trials that pose any risk of severe decline or relapse....
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Heightened-Protections-in-Clinical-Trials&cntnt01returnid=64

Authors: Anderson, Emily E. ; DuBois, James M.
Publication Type: Case Study
Abstract: A researcher wants to test an intervention to prevent child abuse among pregnant women in drug treatment programs but feels that revealing the true aim of the intervention may upset women already in difficult life circumstances (and...
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Withholding-Study-Purpose&cntnt01returnid=64

Authors: Dunn, Angela ; DuBois, James M.
Publication Type: Case Study
Abstract: While in the early stages of Alzheimer’s disease, Bernadette enrolls in an experimental drug study that will not begin until she is the late stages of the disease. Once Bernadette reaches the advanced stages of Alzheimer’s and her c...
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Huperzine&cntnt01returnid=64

Authors: Finn, Peter
Publication Type: Case Study
Abstract: Researchers want to examine the relative contributions of the pharmacological effects of alcohol and the belief that one has consumed alcohol on aggressive behavior in a controlled experiment. Researchers plan to deceive subjects re...
Year: 1995
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=A-Modest-Research-Proposal-on-Alcohol-Experimentation&cntnt01returnid=64

Authors: American Sociological Association
Publication Type: Case Study
Abstract: During a phone interview which is part of a large survey-based study, an interview hears what seems to be a man hitting his child. What should the interviewer and the sociologist in charge of the study do? Does confidentiality pro...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case34

Authors: American Sociological Association
Publication Type: Case Study
Abstract: Judith Levy, the Principal Investigator on a project funded by the National Institute of Drug Abuse is evaluating the efficacy of providing community-based case management and peer support to reduce drug use and HIV transmission amo...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case35

Authors: American Sociological Association
Publication Type: Case Study
Abstract: An academic survey research organization conducts a survey for a state agency examining outcomes from a job training program. All participants are assured that confidentiality will be maintained. When the state agency asks for the...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case38

Authors: American Sociological Association
Publication Type: Case Study
Abstract: A researcher working in two separate research project that are also very similar in topic believes that much knowledge could be gained by linking the two data sets. However, she worries that her informed consent procedure did not an...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case39

Authors: American Sociological Association
Publication Type: Case Study
Abstract: A researcher conducting a study of marital satisfaction among couples would like to be able to share the data he collects with other researchers, and keep the research participant's contact information to ask for a second interview ...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case40