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The Ethics Of Research With Subjects Who Have Dementia

Authors: National Academy of Engineering, Online Ethics Center ; Post, Stephen G.
Publication Type: Teaching Module
Secondary Title: Group Mentoring in Responsible Research
Abstract: This responsible conduct of research teaching module explores key ethical issues that arise in doing research with human subjects who have dementia....
Year: 2006
URL: http://www.onlineethics.org/Resources/TeachingTools/20357/19237/ADreseth.aspx

Biblio - KBL781 - 2011-05-20 09:51

The Ethics of Research with Children

Authors: National Academy of Engineering, Online Ethics Center ; Kodish, Eric
Publication Type: Teaching Module
Secondary Title: Group Mentoring in Responsible Research
Abstract: A responsible conduct of research teaching module using scenarios and other methods to facilitate discussion about the ethical issues that researchers face when research subjects are children....
Year: 2006
URL: http://www.onlineethics.org/Resources/TeachingTools/20357/19237/childres.aspx

Biblio - KBL781 - 2011-05-20 09:52

The Ethics of Research on Vulnerable Populations

Authors: Gaines, Atwood D. ; National Academy of Engineering, Online Ethics Center
Publication Type: Teaching Module
Secondary Title: Group Mentoring in Responsible Research
Abstract: A responsible conduct of research module covering the ethical issues that arise in doing research on vulnerable populations....
Year: 2006
URL: http://www.onlineethics.org/Resources/TeachingTools/20357/19237/vulnres.aspx

Biblio - KBL781 - 2011-05-20 09:52

Research with high-risk populations : balancing science, ethics, and law

Authors: Fisher, Celia B. ; Buchanan, David Ross ; Gable, Lance
Publication Type: Book
Abstract: This book offers social scientists regarding their ethical and legal responsibilities to respond appropriately to threats of harm that may arise during the course of data collection, especially when dealing with high-risk population...
Year: 2009

Biblio - KBL781 - 2010-07-14 13:36

The Ethics of Research with Human Subjects who are Mentally Ill

Authors: Youngner, Stuart ; National Academy of Engineering, Online Ethics Center ; Gaines, Atwood D.
Publication Type: Web Article
Secondary Title: Group Mentoring in Responsible Research
Abstract: A module meant to stimulate discussion among researchers about the ethical issues that arise in conducting research with human subjects who are mentally ill; including topics such as consent, privacy, conflict of interest....
Year: 2006
URL: http://www.onlineethics.org/Resources/TeachingTools/20357/19237/mentres.aspx

Biblio - KBL781 - 2011-05-20 09:50

Ethical conduct of clinical research involving children

Authors: Behrman, Richard E. ; Field, Marilyn J.
Publication Type: Report
Secondary Title: United State, Institutes of Medicine, Board on Health Sciences Policy
Abstract: Ethical Conduct of Clinical Research Involving Children considers the necessities and challenges of this type of research and reviews the ethical and legal standards for conducting it. It also considers problems with the interpretat...
Year: 2004
URL: http://www.nap.edu/catalog.php?record_id=10958

Biblio - KBL781 - 2009-12-03 12:42

The Conduct of Canadian Researchers and Institutional Review Boards Regarding Substituted Consent for Research

Authors: Bravo, Gina ; Dubois, Marie-France ; Paquet, Mariane
Publication Type: Journal Article
Secondary Title: IRB: Ethics & Human Research
Abstract: Focuses on the growth in the number of individuals suffer from diseases that impair the decision-making capacity. Efforts of researchers to identify the causes of the diseases; Recognition of ethical dilemma that arises in conductin...
Year: 2004

Biblio - KBL781 - 2010-09-28 14:15

Reactions to Research Participation in Vulnerable Subgroups

Authors: Widom, Cathy Spatz ; Czaja, Sally J.
Publication Type: Journal Article
Secondary Title: Accountability in Research: Policies & Quality Assurance
Abstract: This paper describes the extent to which vulnerable individuals (defined by economic, social, psychological, physical health, and child maltreatment status) react to research participation. As part of an ongoing longitudinal study, ...
Year: 2005
DOI: 10.1080/08989620590957193

Biblio - KBL781 - 2011-01-25 18:22

An Asthmatic Child

Publication Type: Case Study
Abstract: A scenario meant to stimulate discussion regarding ethical issues in conducting research with children: Parents approach you to ask if their child can be enrolled in a study....
Year: 2006
URL: http://www.onlineethics.org/CMS/2963/modindex/resethpages/asthma.aspx

Biblio - KBL781 - 2009-08-13 09:22

Studying Vulnerable Populations

Authors: Dunn, Angela ; DuBois, James M.
Publication Type: Case Study
Abstract: Mark would like to conduct research for his dissertation at a group home for developmentally disabled persons where he has worked as a social worker for several years. He wants to conduct his dissertation research, and proposes recr...
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Studying-Vulnerable-Individuals&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 12:49

Incapacitated research

Authors: Capron, Alexander Morgan
Publication Type: Journal Article
Secondary Title: Hastings Center Report
Abstract: Discusses the legality of conducting research on mentally incapacitated patients. Reference to the Nuremberg Code expressing that the voluntary consent of the human subject is an absolute essential in research; Citation from the Pub...
Year: 1997

Biblio - KBL781 - 2010-11-18 15:26

Making Everyone Feel Like a Winner

Authors: Fisher, Celia B.
Publication Type: Case Study
Abstract: To minimize distress and the potential for distrust of staff, investigators researching aggression in boys with conduct disorder do not disclose the purpose of the low-risk research but rather present the study activities as a game....
Year: 2003
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Making-Everyone-Feel-Like-a-Winner&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 12:21

Confidentiality and Using Community Members as Interviewers

Authors: Sieber, Joan E.
Publication Type: Case Study
Abstract: Unanticipated problems arise when a researcher employs community members as interviewers for a survey of black teenage crack users. Sieber presents this as an example of good research practices....
Year: 1992
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Confidentiality-and-Using-Community-Members-as-Interviewers&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 11:41

Conducting Survey Results with Adolescents with Anxiety Disorders

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: You are a researcher administering surveys to adolescents with anxiety disorders. The IRB asks you to change the information included on parental consent forms....
Year: 1996
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Conducting-Survey-Research-with-Adolescents-with-Anxiety-Disorde&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 11:02

Pediatric Ethics and Early-Phase Childhood Cancer Research: Conflicted Goals and the Prospect of Benefit

Authors: Kodish, Eric
Publication Type: Journal Article
Secondary Title: Accountability in Research: Policies & Quality Assurance
Abstract: Examines challenges faced in early-phase childhood cancer research based on parameters set by pediatric ethics. Historical background on the victimization of children in medical experimentation; Reasons why there is an absence of si...
Year: 2003
DOI: 10.1080/08989620300502

Biblio - KBL781 - 2011-01-25 17:58

SACHRP Recommendations for Review of Children's Research Requiring DHHS Secretary's Approval

Authors: Fisher, Celia B. ; Kornetsky, Susan Z.
Publication Type: Journal Article
Secondary Title: IRB: Ethics & Human Research
Abstract: The article focuses on the recommendations for the review of children's research requiring the United States Department of Health and Human Services (DHHS) Secretary's approval. If an Institutional Review Board (IRB) determines that...
Year: 2005

Biblio - KBL781 - 2010-09-28 14:18

Group Benefit and Protection of pediatric Research Subjects: Grimes v. Kennedy Krieger and the Lead Abatement Study

Authors: Kopelman, Loretta M.
Publication Type: Journal Article
Secondary Title: Accountability in Research: Policies & Quality Assurance
Abstract: The Maryland Court of Appeals in Grimes v. Kennedy Krieger Institute was sharply critical of the lead abatement study conducted by this Institute. Grimes ruled that investigators might, given the facts of the case, have a special re...
Year: 2002
DOI: http://www.informaworld.com/smpp/content~db=all~content=a713709707

Biblio - KBL781 - 2011-01-25 17:58

General Clinical Research Center Staff Nurse Perceptions and Behaviors Regarding Informed Consent: Results of a National Survey

Authors: Speroff, Ted ; Churchill, Larry ; Black, Margo ; Hedstrom, Christa ; Byrne, Daniel W. ; Pichert, James W. ; Murff, Harvey J.
Publication Type: Journal Article
Secondary Title: IRB: Ethics & Human Research
Abstract: The article discusses the results of the national survey on General Clinical Research Center (GCRC) staff nurses to determine their attitudes, perceptions, and behaviors regarding informed consent process. The survey sample included...
Year: 2006
URL: http://www.jstor.org/stable/30033202

Biblio - KBL781 - 2010-09-28 14:24

Are the New EPA Regulations Concerning Intentional Exposure Studies Involving Children Overprotective?

Authors: Resnik, David B.
Publication Type: Journal Article
Secondary Title: IRB: Ethics & Human Research
Abstract: The author focuses on the U.S. Environmental Protection Agency (EPA) towards its new regulations regarding research using human subjects in the U.S. He sights several problems regarding the new regulations and concerns towards child...
Year: 2007

Biblio - KBL781 - 2010-09-28 14:25

Biomedical research involving prisoners: ethical values and legal regulation.

Authors: Gostin, LO
Publication Type: Journal Article
Secondary Title: JAMA: Journal of the American Medical Association
Abstract: Discusses the history , ethics and regulatory issues involved when using prisoners in biomedical research. Suggests safeguards that should be put in place to promote responsible research and to reduce risks to participating prisoner...
Year: 2007
URL: http://papers.ssrn.com/sol3/papers.cfm?abstract_id=976413

Biblio - KBL781 - 2010-04-29 13:33

Conducting Clinical Drug Trials on Children

Authors: Fisher, Celia B.
Publication Type: Case Study
Abstract: A team of psychologists and psychiatrists at a medical school received IRB approval to assess the behavioral, cognitive, and physical side effects of a medication recently approved by the Food and Drug Administration (FDA) as an alt...
Year: 2003
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Conducting-Clinical-Drug-Trials-with-Children&cntnt01returnid=64

Biblio - KBL781 - 2009-11-23 12:18

Case studies: Questions & Comments Understanding Consent in Research Involving Children: The Ethical Issues 

Authors: Spriggs, Merle ; Gillam, Lynn ; Thomson, Colin ; Oakley, Justin ; Children's Bioethics Center, The Royal Children's Hospital Melbourne
Publication Type: Report
Abstract: This resource provides guidance on thinking through ethical issues in research involving children and young people and presents some models for best practice. Some cases will be easy and some will be hard. It is intended that there ...
Year: 2009
URL: http://www.mcri.edu.au/projects/ConsentInResearch/educational/case-studies.asp

Biblio - KBL781 - 2011-08-01 16:39

Informed Consent for Dementia Research: The Study Enrollment Encounter

Authors: Kass, Nancy E. ; Black, Betty S. ; Rabins, Peter V. ; Fogarty, Linda A.
Publication Type: Journal Article
Secondary Title: IRB: Ethics & Human Research
Abstract: The article reports on the increase in number of elders who are affected by dementia, a mental deterioration of organic or functional origin, in the U.S. This increase implies that there is a need for the development of treatment es...
Year: 2007

Biblio - KBL781 - 2010-09-28 14:15

Confidentiality: More than a linkage file and a locked drawer

Authors: Henderson, Gail E. ; Davis, Arlene M. ; Easter, Michele M.
Publication Type: Journal Article
Secondary Title: IRB: Ethics & Human Research
Abstract: The article examines how researchers keep their promise of confidentiality and how that promise is sometimes challenged during primary data collection. It is noted that researchers promise confidentiality because their purpose is to...
Year: 2004

Biblio - KBL781 - 2010-09-28 14:17

Working at Cross Purposes

Authors: Sieber, Joan E.
Publication Type: Case Study
Abstract: A researcher attempts to gather information from Chicano families regarding children’s needs. The researcher is unaware that many of the people in the community are not legal residents of the U.S., a fact that may affect respondents...
Year: 1992
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Working-at-Cross-Purposes&cntnt01returnid=64

Biblio - KBL781 - 2009-11-19 14:19