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The Responsible Collection, Retention, Sharing, and Interpretation of Data

Authors: Whitbeck, Caroline
Publication Type: Teaching Module
Abstract: A training module using scenarios and other methods to facilitate discussion about the key ethical issues that arise in data management in research....
Year: 2006
URL: http://www.onlineethics.org/CMS/2963/modindex/moddata.aspx

Biblio - KBL781 - 2009-07-27 16:11

Access To and Retention of Data

Publication Type: Web Article
Abstract: This publication by the Council on Governmental Relations lays out academic and research institutions' obligations regarding the retention and providing access to research data. The guide discusses issues of ownership of data, issue...
Year: 2006
URL: http://www.cogr.edu/viewDoc.cfm?DocID=151633

Biblio - KBL781 - 2011-01-24 17:27

Who Owns the Record? Whose Project is it?

Authors: Krulwich, Terry Ann
Publication Type: Case Study
Abstract: Scenairo that discusses proper use of data and record keeping policies in a lab....
Year: 2006
URL: http://www.onlineethics.org/CMS/2963/rescases/msindex/msrecord.aspx

Biblio - KBL781 - 2009-08-12 13:05

Data Management

Publication Type: Online Tutorial
Abstract: This online tutorial (available via Flash or HTML) gives an introduction of how to manage data during scientific research It includes issues of data selection, collection handling, analysis, publishing and reporting, and issues of d...
Year: 2004
URL: http://ori.dhhs.gov/education/products/n_illinois_u/rcrmain.html

Biblio - KBL781 - 2009-10-05 09:26

Editors' Overview: Topics in the Responsible Management of Research Data

Authors: Vollmer, Sara H. ; Giffels, Joe ; Bird, Stephanie J.
Publication Type: Journal Article
Secondary Title: Science & Engineering Ethics
Abstract: Responsible data management is a multifaceted topic involving standards within the research community regarding research design and the sharing of data as well as the collection, selection, analysis and interpretation of data. This ...
Year: 2010
DOI: 10.1007/s11948-010-9243-1

Biblio - KBL781 - 2011-01-04 16:12

NIH Data Sharing Policy and Implementation Guidance

Publication Type: Guidelines & Regulations
Abstract: This web site includes a list of guidance documents covering the sharing of data from NIH-funded studies. Int includes issues of proprietary data, privacy issues when dealing with data about human subjects,methods for data sharing ...
Year: 2003
URL: http://grants.nih.gov/grants/policy/data_sharing/data_sharing_guidance.htm

Biblio - KBL781 - 2011-01-25 14:11

Educating Clinical Staff in Clinical Research Data Collection and Data Management

Authors: United States Department of Health and Human Services, Office of Research Integirty ; St. Jude Children's Research Hospital ; Robinson, Geraldine ; Hans, Michael ; Hawkins, Dana ; Doville, Amy ; Chanaud, Cheryl
Publication Type: Online Tutorial
Abstract: This online course provides guidance for clinical staff working as part as a clinical research project on data acquisition, data integrity, and data management. Because data management can be severely impacted by non-research person...
Year: 2002
URL: http://ori.hhs.gov/education/products/stjude/start.html

Biblio - KBL781 - 2012-10-30 09:50

Guidelines for Responsible Data Management in Scientific Research

Authors: United States, Department of Health and Human Services, Office of Research Integrity ; Wells, Jonathan F. ; Clinical Tools, Inc. ; Coulehan, Megan B.
Publication Type: Online Tutorial
Abstract: Data management is one of the essential areas of responsible conduct of research. This educational course will educate new investigators about conducting responsible data management in scientific research. This course includes backg...
Year: 9999
URL: http://ori.hhs.gov/images/ddblock/data.pdf

Biblio - KBL781 - 2012-10-30 09:56

Data Management in Academic Settings: An Intellectual Property Perspective

Authors: Geller, Lisa
Publication Type: Journal Article
Secondary Title: Science & Engineering Ethics
Abstract: Intellectual property can be an important asset for academic institutions. Good data management practices are important for capture, development and protection of intellectual property assets, and are especially important when resea...
Year: 2010
DOI: 10.1007/s11948-010-9240-4

Biblio - KBL781 - 2011-01-04 16:12

Issues in Data Management

Authors: Joshi, Margi ; Krag, Sharon S.
Publication Type: Journal Article
Secondary Title: Science & Engineering Ethics
Abstract: This article discusses a number of regulatory and non-regulatory issues surrounding the subject of data management. This includes the importance that researchers should understand how data are defined by their particular institution...
Year: 2010
DOI: 10.1007/s11948-010-9223-5

Biblio - KBL781 - 2011-01-04 16:15

The Importance of Defining 'Data' in Data Management Policies

Authors: Hoffman-Kim, Diane ; Richardson, Julie
Publication Type: Journal Article
Secondary Title: Science & Engineering Ethics
Abstract: What comprises 'data' varies from one institution to another based on the information which is deemed important by individual institutions. To effectively and efficiently produce, collect, and retain data, an organization must devel...
Year: 2010
DOI: 10.1007/s11948-010-9231-5

Biblio - KBL781 - 2011-01-04 16:20

Risks to the Data

Authors: Whitbeck, Caroline
Publication Type: Case Study
Abstract: A scenario meant to stimulate discussion about how to protect the data in a research lab....
Year: 2006
URL: http://www.onlineethics.org/Resources/Cases/risks.aspx

Biblio - KBL781 - 2009-08-13 10:14

Outliers in Survey Data

Authors: Whitbeck, Caroline
Publication Type: Case Study
Abstract: A scenario meant to stimulate discussion about how to interpret data....
Year: 2006
URL: http://www.onlineethics.org/Resources/Cases/outl.aspx

Biblio - KBL781 - 2009-08-13 10:09

My Data

Authors: Whitbeck, Caroline
Publication Type: Case Study
Abstract: A scenario meant to stimulate discussion about who posseses data produced in a lab....
Year: 2006
URL: http://www.onlineethics.org/Resources/Cases/mydata.aspx

Biblio - KBL781 - 2009-08-13 09:50

Data Retention & Access Scenarios

Publication Type: Case Study
Abstract: This is a collection of four short case studies looking at issues of the retention and access of research data. They deal with issues of what happens when data is lost, who is responsible for storing research data, who has access t...
Year: 2004
URL: http://206.151.87.67/docs/CaseScenarioIDataRetention.htm

Biblio - KBL781 - 2011-01-10 15:34

Developing and Communicating Responsible Data Management Policies to Trainees and Colleagues

Authors: Frugoli, Julia ; Etgen, Anne M. ; Kuhar, Michael
Publication Type: Journal Article
Secondary Title: Science & Engineering Ethics
Abstract: The basic components of data management including data ownership, collection, selection, recording, analysis, storage, retention, destruction, and sharing. Experience as practicing scientists and teachers has aided in developing hel...
Year: 2010
DOI: 10.1007/s11948-010-9219-1

Biblio - KBL781 - 2011-01-04 16:12

RCR - Lab Management

Authors: Washington State University
Publication Type: Online Tutorial
Abstract: This online module is meant to help principal investigators and technical personnel working on a research project successful manage all aspects of the project. It includes modules on how to properly manage fiscal and administrative ...
Year: 2007
URL: http://ori.hhs.gov/education/products/wsu/default.html

Biblio - KBL781 - 2012-10-18 13:21

Lab Management Video Vignettes

Authors: Laboratory Management Institute at the University of California, Davis
Publication Type: Film or Broadcast
Abstract: This series of video vignettes offers guidance on several issues pertaining to ethics in the research laboratory, including authorship, quality assurance, and day-to-day laboratory management issues. The series was funded by the Off...
Year: 2010
URL: http://learning.ucdavis.edu/LabAct/

Biblio - Anonymous - 2011-09-19 15:08

Managing Data for Integrity: Policies and Procedures for Ensuring the Accuracy and Quality of the Data in the Laboratory

Authors: Pascal, Chris B.
Publication Type: Journal Article
Secondary Title: Science and Engineering Ethics
Abstract: Management of the research data is an extremely important responsibility of the principal investigator (PI) and other members of the research team. Without accurate data, no worthwhile conclusions can be drawn from the research stud...
Year: 2006

Biblio - KBL781 - 2009-09-14 13:16

Overly Ambitious Researchers - Fabricating Data

Authors: Goldfarb, Theodore ; Pritchard, Michael S.
Publication Type: Case Study
Abstract: Describes two real-life cases from the 1980's handling the fabrication of data. The first covers the Darsee case in which a faculty member, considered a rising star at Harvard University, fabricated data in his research on heart med...
Year: 2000
URL: http://onlineethics.org/CMS/edu/precol/scienceclass/sectone/cs1.aspx

Biblio - KBL781 - 2009-08-05 10:11

A Lie or Just " A Way of Speaking?"

Publication Type: Case Study
Abstract: A scenario meant to stimulate discussion about the phrasing of key pieces of information....
Year: 2006
URL: http://www.onlineethics.org/CMS/2963/modindex/resethpages/lie.aspx

Biblio - KBL781 - 2009-08-13 09:16

Data Sharing Scenario

Publication Type: Case Study
Abstract: Dr. Dunan Saco runs an extremely successful neurology program whose research is mostly funded by NIH, however some of his support is generated by private foundations and corporate sponsors. Dr. Saco indicated in one of his funded a...
Year: 2006
URL: http://206.151.87.67/docs/CaseScenarioIIDataSharing.htm

Biblio - KBL781 - 2011-01-24 17:28

Suppressing Research Data: Methods, Context, Accountability, and Responses

Authors: Martin, Brian
Publication Type: Journal Article
Secondary Title: Accountability in Research: Policies & Quality Assurance
Abstract: Discusses the suppression of research data. Methods of suppression; Context of suppression; Ways to challenge suppression of research data....
Year: 1999
DOI: 10.1080/08989629908573935

Biblio - KBL781 - 2011-01-25 18:03

Case Study 1: Overly Ambitious Researchers - Fabricating Data

Authors: Pritchard, Michael S. ; Goldfarb, Theodore ; National Academy of Engineering, Online Ethics Center
Publication Type: Case Study
Secondary Title: Ethics in the Science Classroom
Abstract: Case Study 1 of six cases presented during a Summer Institute instructional program. Case Study 1 discusses researchers and fabrication of data through analysis of the John Darsee Case, a brilliant young medical researcher who falsi...
Year: 2007
URL: http://www.onlineethics.org/Education/precollege/scienceclass/sectone/cs1.aspx

Biblio - KBL781 - 2011-05-20 12:59

Sharing Scientific Data II: Normative Issues

Authors: Weil, Vivian ; Hollander, Rachelle
Publication Type: Journal Article
Secondary Title: IRB: Ethics and Human Research
Abstract: This article discusses the norms of science when it comes to the sharing of data, and then looks at what professional societies, scientific groups, and government agencies can do help set standards for sharing information. Instituti...
Year: 1990
URL: http://www.jstor.org/stable/3563522
DOI: 10.2307/3563522

Biblio - KBL781 - 2012-12-17 12:33