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The Role of Databank Managers As Guardians of Public Interests: Commentary on 'Strategies for Consulting with the Community: The Cases of Four Large-Scale Databanks'

Authors: Geller, Lisa N.
Publication Type: Journal Article
Secondary Title: Science and Engineering Ethics
Abstract: Discusses the responsibilities of a genetic data bank manager to donors and the community, response to article, 'Strategies for Consulting with the Community: The Cases of Four Large-Scale Databanks'...
Year: 2004
DOI: http://www.springerlink.com/content/t4wm2222754w1473/

Biblio - KBL781 - 2009-07-13 15:20

Ethical Questions in the Age of the New Eugenics

Authors: Wiener, Neil I. ; Wiesenthal, David L.
Publication Type: Journal Article
Secondary Title: Science and Engineering Ethics
Abstract: The ethical concepts of beneficence, avoidance of maleficence, autonomy, and equity are discussed in terms of aspects of the Human Genome Project. One major issue is the need for an ethical system available to health consumers that ...
Year: 1999
DOI: 10.1007/s11948-999-0029-2

Biblio - KBL781 - 2009-09-14 13:52

Researchers` Duty to Warn

Authors: Schrag, Brian
Publication Type: Case Study
Abstract: The PI of an HIV/AIDS research project finds out that one of the positive participants is having unprotected sex with her unknowing boyfriend. He is faced with the dilemma of what to do since the interviews are supposed to be confid...
Year: 1999
URL: http://www.research.umn.edu/ethics/pdf/researchersdutytowarn.pdf

Biblio - KBL781 - 2009-10-08 12:40

The Code of codes : scientific and social issues in the Human Genome Project

Authors: Hood, Leroy E. ; Kevles, Daniel J.
Publication Type: Book
Abstract: This collection of essays discusses the history of the Human Genome Project and possible consequences of this project in relation to ethics, law, and society. ...
Year: 1992

Biblio - KBL781 - 2009-09-14 13:09

fMRI and Lie Detection

Authors: Connolly, Peggy ; Leever, Martin ; Althaus, Ruth Ann ; Skipper, Robert Boyd ; Bellon, Christina ; Brinkman, Anthony
Publication Type: Case Study
Abstract: Imaging technologies, such as magnetic resonance imaging (MRI) have proven to be a powerful diagnostic tool in clinical medicine, and a recent innovation, functional magnetic resonance imaging (fMRI) allows neuroscientists to track ...
Year: 2007
URL: http://ethics.iit.edu/EEL/fMRI.pdf

Biblio - KBL781 - 2010-03-15 16:25

Museums Showing Live Surgeries

Authors: Potthast, Adam ; Diaz-Sprague, Raquel ; Miller, Richard ; Dodds, Rhainnon ; Jones, Jeremy ; Dillard, Brenda ; Matalski, Mark ; Carr, Edward ; Russell, Terry
Publication Type: Case Study
Abstract: The State University Museum, who has one of the nation's premier exhibits of the history of medicine, has historically shown edited videos common surgeries in their exhibit. As these films quickly go out of date, the curator of the...
Year: 2006
URL: http://ethics.iit.edu/EEL/Surgeries%20Shown%20Live%20in%20Educational%20Museum.pdf

Biblio - KBL781 - 2010-03-18 10:53

Regulating Risk: Defining Genetic Privacy in the United States and Britain

Authors: Parthasarathy, Shobita
Publication Type: Journal Article
Secondary Title: Science, Technology & Human Values
Abstract: Using data from interviews, document analysis, and ethnographic observation, the author follows debates among advocacy groups, insurers, and governments in the United States and Britain about the appropriate use of genetic informati...
Year: 2004
DOI: 10.1177/0162243904264485

Biblio - KBL781 - 2010-08-23 14:57

The Genetic Information Nondiscrimination Act: Fear Factor or Fantasy Island?

Authors: Wilfond, Benjamin S.
Publication Type: Journal Article
Secondary Title: Hastings Center Report
Abstract: The author reflects on the Genetic Information Nondiscrimination Act (GINA). He claims that the U.S. legislation's implications would be difficult to determine because of various factors, including its scope's limitation to employme...
Year: 2008
DOI: 10.1353/hcr.0.0077

Biblio - KBL781 - 2010-11-10 17:42

Insurance for the insurers : The Use of Genetic Tests

Authors: Kass, Nancy E.
Publication Type: Journal Article
Secondary Title: Hastings Center Report
Abstract: Questions whether the precedents set by the US insurance industry are an adequate basis for genetic testing policy. History of the insurance industry; Insurance coverage today; Implications of genetically based tests for research; E...
Year: 1992

Biblio - Anonymous - 2010-11-16 13:01

Genetics and the moral mission of health insurance

Authors: Murray, Thomas H.
Publication Type: Journal Article
Secondary Title: Hastings Center Report
Abstract: Reexamines the ethical significance of a wide variety of human differences and the larger social purposes of a variety of institutions, among them health, life and other forms of insurance. Genetics and distributive justice; The kin...
Year: 1992

Biblio - Anonymous - 2010-11-16 13:00

Genetic Exceptionalism & Legislative Pragmatism

Authors: Rothstein, Mark A.
Publication Type: Journal Article
Secondary Title: Hastings Center Report
Abstract: Considers the policy issues surrounding genetic exceptionalism. Options of the policy-makers in deciding on the legal response to genetic information; Factors that affect the success of genetic-specific laws; Limitations of genetic-...
Year: 2005
DOI: 10.1353/hcr.2005.0046

Biblio - KBL781 - 2010-11-18 16:46

Taking behavioral genetics seriously

Authors: Parens, Erik
Publication Type: Journal Article
Secondary Title: Hastings Center Report
Abstract: Comments on the need to consider the moral basis of behavioral genetics. Threat of genetic selection on democratic ideas such as moral equality; Importance of understanding the inseparability of the body and the soul; Need for vigil...
Year: 1996

Biblio - KBL781 - 2010-11-18 16:37

Implantable Brain Chips? Time for Debate

Authors: Maguire, Jr G. Q. ; McGee, Ellen M.
Publication Type: Journal Article
Secondary Title: Hastings Center Report
Abstract: Ponders on the moral implications of the machine-assisted mind or the possibility of the `cyborgization' of humankind. Sample of bioelectronic developments; Discussion on implantable brain chips; Moral debate on implantable brain ch...
Year: 1999

Biblio - KBL781 - 2010-11-18 16:19

Fetal tissue research and the misread compromise

Authors: Vawter, D. E. ; Kearney, W.
Publication Type: Journal Article
Secondary Title: Hastings Center Report
Abstract: Details problems which may ensue from two requirements on the bill to restore federal funding for human fetal tissue research. Passage of the bill by the House; Need for women to sign a statement certifying that they did not undergo...
Year: 1991

Biblio - KBL781 - 2010-11-18 16:08

"Police" Powers and Public Health Paternalism: HIV and Diabetes Surveillance

Authors: Gostin, Lawrence O.
Publication Type: Journal Article
Secondary Title: Hastings Center Report
Abstract: The article focuses on the implementation of human immunodeficiency virus and diabetes surveillance initiatives by the New York City Health Department. The initiatives are part of the city's public health interventions. The diabetes...
Year: 2007
DOI: 10.1353/hcr.2007.0022

Biblio - KBL781 - 2010-11-18 15:54

The dispersion of genetic technologies and the law

Authors: Clayton, Ellen Wright
Publication Type: Journal Article
Secondary Title: Hastings Center Report
Abstract: Focuses on the law's response to genetic testing in the United States. Less prominent role of the federal government in genetic testing; Role of private litigation in the dispersion of genetic services; Legislative responses to gene...
Year: 1995

Biblio - KBL781 - 2010-11-18 15:29

Smart Cards, Smarter Policy : Medical Records, Privacy, and Health Care Reform

Authors: Alpert, Sheri
Publication Type: Journal Article
Secondary Title: Hastings Center Report
Abstract: Reports on the technological innovations being introduced as policy reform toward greater privacy of medical records. Reliance on computer technology to facilitate flow of medical records; Reforms on the national health care system;...
Year: 1993

Biblio - KBL781 - 2010-11-18 15:03

Pediatricians Asking Parents About Guns

Authors: Myers, Gretchen A. ; Diaz-Sprague, Raquel ; Association for Practical and Professional Ethics ; Funke, Michael Brian ; Potthast, Adam ; Funke, Rhiannon Dodds ; Boxall, Susanna Flavia
Publication Type: Case Study
Abstract: Florida recently passed the Privacy of Firearms Owners Act, which prohibits physicians and other healthcare providers from asking parents whether they own guns unless they have a good faith belief that the question is, "relevant to ...
Year: 2011
URL: http://ethics.iit.edu/EEL/Pediatricians Asking Parents About Guns.pdf

Biblio - Anonymous - 2011-09-09 13:05

Case studies in public health ethics

Authors: Coughlin, Steven S.
Publication Type: Book
Abstract: This volume contains cases covering issues of privacy and confidentiality protection, informed consent in public health research, the ethics of randomized trials, vulnerable populations, genetic discrimination, AIDS prevention and t...
Year: 2009

Biblio - KBL781 - 2011-10-07 15:22

Who Gets to Know? Genetics and Privacy

Authors: Gert, Bernard
Publication Type: Audiovisual
Abstract: When it comes to genetic testing, how much should a patient be told? If the news is bad, who else should the patient inform? And should such privileged information be made available to employers, insurance companies, and others? Thi...
Year: 2002

Biblio - KBL781 - 2009-09-21 11:55

Law Allowing Adopted Children to Find Out About Birth Parents

Authors: Robert Ladenson ; Center for the Study of Ethics in the Professions, Illinois Institute of Technology
Publication Type: Case Study
Abstract: In 1995 the state of Tennessee enacted a law that has become the subject of heated controversy, which allows individuals over the age of twenty one, who were adopted as children, to find out the names, addresses, and other informati...
Year: 1996
URL: http://ethics.iit.edu/EEL/Adoption.pdf

Biblio - Anonymous - 2011-08-02 11:52