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Mentally disabled research subjects. The enduring policy issues.

Authors: Dresser, R
Publication Type: Journal Article
Secondary Title: JAMA
Abstract: The author explores how U.S. regulatory policy falls to resolve many ethical issues inherent in research involving mentally disabled adults, and the many areas that must be addressed by investigators and institutional review boards ...
Year: 1996
URL: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=8667543

Biblio - KBL781 - 2010-04-29 13:32

Research with high-risk populations : balancing science, ethics, and law

Authors: Fisher, Celia B. ; Buchanan, David Ross ; Gable, Lance
Publication Type: Book
Abstract: This book offers social scientists regarding their ethical and legal responsibilities to respond appropriately to threats of harm that may arise during the course of data collection, especially when dealing with high-risk population...
Year: 2009

Biblio - KBL781 - 2010-07-14 13:36

Spanking

Publication Type: Case Study
Abstract: Democratic assemblywoman Sally Lieber of Mountain View California has proposed legislation to prohibit spanking a child three years or younger. While this type of legislation is novel in the United States, spanking laws are the norm...
Year: 2010
URL: http://ethics.iit.edu/EEL/Spanking.pdf

Biblio - KBL781 - 2010-09-08 09:49

Bipolar Mania and Capacity to Consent: Recommendations for Investigators and IRBs

Authors: Misra, Sahana ; Rosenstein, Donald ; Socherman, Robert ; Ganzini, Linda
Publication Type: Journal Article
Secondary Title: IRB: Ethics & Human Research
Abstract: The article presents a review of research on the decisional capacity of patients with mental health disorders, discusses how mania characteristics may affect research participation and provides recommendations for investigators and ...
Year: 2010

Biblio - KBL781 - 2010-09-28 14:23

Incapacitated research

Authors: Capron, Alexander Morgan
Publication Type: Journal Article
Secondary Title: Hastings Center Report
Abstract: Discusses the legality of conducting research on mentally incapacitated patients. Reference to the Nuremberg Code expressing that the voluntary consent of the human subject is an absolute essential in research; Citation from the Pub...
Year: 1997

Biblio - KBL781 - 2010-11-18 15:26

Reactions to Research Participation in Vulnerable Subgroups

Authors: Widom, Cathy Spatz ; Czaja, Sally J.
Publication Type: Journal Article
Secondary Title: Accountability in Research: Policies & Quality Assurance
Abstract: This paper describes the extent to which vulnerable individuals (defined by economic, social, psychological, physical health, and child maltreatment status) react to research participation. As part of an ongoing longitudinal study, ...
Year: 2005
DOI: 10.1080/08989620590957193

Biblio - KBL781 - 2011-01-25 18:22

The Ethics Of Research With Subjects Who Have Dementia

Authors: National Academy of Engineering, Online Ethics Center ; Post, Stephen G.
Publication Type: Teaching Module
Secondary Title: Group Mentoring in Responsible Research
Abstract: This responsible conduct of research teaching module explores key ethical issues that arise in doing research with human subjects who have dementia....
Year: 2006
URL: http://www.onlineethics.org/Resources/TeachingTools/20357/19237/ADreseth.aspx

Biblio - KBL781 - 2011-05-20 09:51

The Ethics of Research with Children

Authors: National Academy of Engineering, Online Ethics Center ; Kodish, Eric
Publication Type: Teaching Module
Secondary Title: Group Mentoring in Responsible Research
Abstract: A responsible conduct of research teaching module using scenarios and other methods to facilitate discussion about the ethical issues that researchers face when research subjects are children....
Year: 2006
URL: http://www.onlineethics.org/Resources/TeachingTools/20357/19237/childres.aspx

Biblio - KBL781 - 2011-05-20 09:52

The Ethics of Research with Human Subjects who are Mentally Ill

Authors: Youngner, Stuart ; National Academy of Engineering, Online Ethics Center ; Gaines, Atwood D.
Publication Type: Web Article
Secondary Title: Group Mentoring in Responsible Research
Abstract: A module meant to stimulate discussion among researchers about the ethical issues that arise in conducting research with human subjects who are mentally ill; including topics such as consent, privacy, conflict of interest....
Year: 2006
URL: http://www.onlineethics.org/Resources/TeachingTools/20357/19237/mentres.aspx

Biblio - KBL781 - 2011-05-20 09:50

De-Sexing Children

Authors: Diaz-Sprague, Raquel ; Association for Practical and Professional Ethics ; Funke, Michael Brian ; Boxall, Susanna Flavia ; Funke, Rhiannon Dodds ; Potthast, Adam ; Myers, Gretchen A.
Publication Type: Case Study
Abstract: The Talvarez family has gone to great lengths to make sure their children get to choose their gender identities free from outside influences. They did not include the gender of their children on birth announcements, named their chil...
Year: 2011
URL: http://ethics.iit.edu/EEL/De-sexing%20Children.pdf

Biblio - Anonymous - 2011-09-09 11:04

IRBs: Protecting the Well-Being of Subject-Participants with Mental Disorders That May Affect Decision making Capacity

Authors: Baylis, Francoise
Publication Type: Journal Article
Secondary Title: Accountability in Research: Policies & Quality Assurance
Abstract: Focuses on the functions of Institutional Review Boards (IRBs), local research review mechanisms in the United States intended to promote research involving humans that is appropriately respectful of the dignity of subjects and prot...
Year: 1999
DOI: 10.1080/08989629908573951

Biblio - KBL781 - 2011-01-25 17:38

Ensuring Fair Representation of Minority Children in Research

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: A multi-site study comparing several treatment modalities for children with ADHD using random assignment seeks to ensure fair representation and access to research benefits for minority children given issues of potential overdiagnos...
Year: 1996
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Ensuring-Fair-Representation-of-Minority-Children-in-Research&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 11:08

Ethical Issues in Mental Health Research with Children and Adolescents

Authors: Hoagwood, Kimberly ; Jensen, Peter S. ; Fisher, Celia B.
Publication Type: Book
Abstract: This book contains chapters on the kinds of ethical dilemmas that typically occur in different types of studies of children, and then presents 65 real-world cases from experts who study children's mental health. These experts offer ...
Year: 1996

Biblio - KBL781 - 2009-11-20 11:11

Placebo Trials with Prevalent but Unproven Treatments

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: At a residential treatment center for persons with mental retardation, lithium is frequently used to treat aggressive and self-injurious adolescents. However, this use of the drug has never been systematically tested on this populat...
Year: 1996
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Placebo-Trials-with-Prevalent-but-Unproven-Treatments&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 11:24

Waivers of Parental Permisssion for Research with Gay and Lesbian Adolescents

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: Researchers seek a wavier of parental/guardian consent for a study examining psychosocial stressors and anxiety and depressive disorders in gay and lesbian adolescents....
Year: 1996
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Waivers-of-Parental-Permission-for-Research-with-Gay-and-Lesbian&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 11:34

Confidentiality and Using Community Members as Interviewers

Authors: Sieber, Joan E.
Publication Type: Case Study
Abstract: Unanticipated problems arise when a researcher employs community members as interviewers for a survey of black teenage crack users. Sieber presents this as an example of good research practices....
Year: 1992
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Confidentiality-and-Using-Community-Members-as-Interviewers&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 11:41

Getting Consent to do Research on Institutionalized Children

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: Investigators studying the neurological correlates of AIDS in infected children evaluate the risks and benefits to institutionalized child participants...
Year: 1996
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Getting-Consent-to-do-Research-on-Institutionalized-Children&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 11:59

Making Everyone Feel Like a Winner

Authors: Fisher, Celia B.
Publication Type: Case Study
Abstract: To minimize distress and the potential for distrust of staff, investigators researching aggression in boys with conduct disorder do not disclose the purpose of the low-risk research but rather present the study activities as a game....
Year: 2003
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Making-Everyone-Feel-Like-a-Winner&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 12:21

A Sign from the Heavens

Authors: DuBois, James M. ; Dunn, Angela
Publication Type: Case Study
Abstract: Roger, who was diagnosed with schizophrenia 20 years ago, wants to enroll in an experimental drug study based on the recommendation of his psychiatrist. ...
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=A-Sign-from-the-Heavens&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 12:35

It's All the Same

Authors: DuBois, James M.
Publication Type: Case Study
Abstract: A psychiatric researcher feels that a research coordinator recruiting patients for drug trials may be giving participants false hope about the experimental treatments being tested....
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=It-s-All-the-Same&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 12:46

Studying Vulnerable Populations

Authors: Dunn, Angela ; DuBois, James M.
Publication Type: Case Study
Abstract: Mark would like to conduct research for his dissertation at a group home for developmentally disabled persons where he has worked as a social worker for several years. He wants to conduct his dissertation research, and proposes recr...
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Studying-Vulnerable-Individuals&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 12:49

Severe Emotional Disturbance Studies

Authors: DuBois, James M.
Publication Type: Case Study
Abstract: Dr. Randall has proposed two studies involving children with severe emotional disturbance (SED), one involving a control group and the other random assignment into foster care. Discussion questions ask, based on the details of the p...
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Severe-Emotional-Disturbance-Studies&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 13:11

Splitsville

Authors: Keith-Spiegel, Patricia ; Koocher, Gerald P.
Publication Type: Case Study
Abstract: Parents disagree over enrolling their son in a research project using aversive conditioning to eliminate his cocaine addiction....
Year: 1990
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Splitsville&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 13:25

Considering Children's Dissent

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: Although 10-year old Ryan’s parents sign a consent form for participation in a clinical trial for a new drug for ADHD, Ryan refuses to assent....
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Considering-Children-s-Dissent&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 16:18

Lack of Permission and Assessent

Authors: Koocher, Gerald P. ; Keith-Spiegel, Patricia
Publication Type: Case Study
Abstract: Researchers have the appropriate permissions and assent to observe playground behavior of specific children. Nonstudy children, unaware of the study, are observed only when interacting with study children and are not identified by n...
Year: 1990
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Lack-of-Permission-and-Assent&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 16:26