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Authors: Kodish, Eric
Publication Type: Case Study
Abstract: A scenario that covers ethical issues that arise when children are reluctant to continue participation in research studies....
Year: 2000
URL: http://www.onlineethics.org/CMS/2963/modindex/resethpages/conobl2.aspx

Biblio - KBL781 - 2009-08-13 09:30

Commercialization

Authors: Murray, Thomas H.
Publication Type: Case Study
Abstract: Should donors of human biological material for research be told of the potential profits companies and researchers may gain from this research?...
Year: 2006
URL: http://www.onlineethics.org/CMS/2963/modindex/resethpages/commercialization.aspx

Biblio - KBL781 - 2009-08-13 09:28

The Orphan Embryos : A Case Study in Bioethics

Authors: Whittaker, Peter ; Santos, Heloisa G. dos ; Sakaguchi, Donald ; Pareja, Enrique ; Gouvenia, Maria M. C.
Publication Type: Case Study
Abstract: Mr. and Mrs. Smith went through in vitro fertilization a number of years ago and had a number of viable embryos kept frozen at their local hospital. A year later, both of the Smiths were killed in an automobile accident. Now, a re...
Year: 2004
URL: http://www.bioethics.iastate.edu/classroom/orphanembryos.html

Biblio - KBL781 - 2009-08-26 13:12

False hopes and best data: consent to research and the therapeutic misconception.

Authors: Appelbaum, PS ; Winslade, William J. ; Lidz, CW ; Roth, LH ; Benson, P
Publication Type: Journal Article
Secondary Title: Hastings Cent Report
Abstract: The author discusses some of the ethical issues that arise in clinical trials when a randomized, double-blind trial is being run for general knowledge about the treatments, but human participants believe they will personally benefit...
Year: 1987
URL: http://k30.im.wustl.edu/ethics/week3/Applebaum_therapeutic_misconception.pdf

Biblio - KBL781 - 2009-09-14 11:47

Informed Consent: Diminished Competency

Authors: Korenman, Stanley G. ; Shipp, Allan C.
Publication Type: Case Study
Abstract: Case poses questions regarding the recruitment of subjects with Alzheimer`s to test a drug with possible side effects, some of which can be serious....
Year: 1994
URL: http://www.research.umn.edu/ethics/pdf/InformedConsent.htm

Biblio - KBL781 - 2009-10-08 10:50

Informed consent in the Childrens Cancer Group: results of preliminary research.

Authors: Pentz, RD ; Kodish, ED ; Ruccione, K ; Buckley, J ; Noll, RB ; Lange, BJ
Publication Type: Journal Article
Secondary Title: Cancer
Abstract: The authors of this article studied the informed consent process and parents' and physicians reactions to this process at Children's Cancer Centers around the United States. Of parents interviewed about the informed consensus proje...
Year: 1998
URL: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=9635541
DOI: 10.1002/(SICI)1097-0142(19980615)82

Biblio - KBL781 - 2009-09-14 13:09

Ethical and regulatory aspects of clinical research : readings and commentary

Authors: Emanuel, Ezekiel J.
Publication Type: Book
Abstract: A collection of essays including the following: U.S. medical researchers, the Nuremberg doctors trial, and the Nuremberg Code: a review of findings of the Advisory Committee on Human Radiation Experiments -- The Jewish Chronic Dise...
Year: 2003

Biblio - KBL781 - 2009-10-08 14:09

The Case of the Depressed Patient

Authors: Lee, Melinda
Publication Type: Case Study
Abstract: A doctor must decide if a patient's decision to stop dialysis is motivated by depression....
Year: 1997
URL: http://www.scu.edu/ethics/dialogue/candc/cases/patient.html

Biblio - KBL781 - 2009-11-09 16:06

Cases in Medical Ethics: Student-Led Disussions

Authors: Cirone, Chris
Publication Type: Case Study
Abstract: A selection of medical ethics cases designed to bring up ethical issues in the field if medicine and help students determine whether medicine is the correct calling for them....
Year: 2001
URL: http://www.scu.edu/ethics/publications/submitted/cirone/medical-ethics.html

Biblio - KBL781 - 2009-11-10 12:25

Conscientious Student

Authors: Stanford Biodesign, Stanford University
Publication Type: Case Study
Abstract: A student in biodesign with a Ph.D in Mechanical Engineering has received the patient's consent to be in the operating room and observe a cardiovascular surgical procedure. When one of the assisting physicians leaves the room, anoth...
Year: 2007
URL: http://biodesign.stanford.edu/bdn/ethicscases/3conscientioustudent.jsp

Biblio - KBL781 - 2009-11-13 12:13

Hepatitis Studies at the Willowbrook State School for Children with Mental Retardation

Authors: DuBois, James M.
Publication Type: Case Study
Abstract: From 1956 through 1971, residents at the Willowbrook State School for Children with Mental Retardation were infected with live hepatitis in order to develop a vaccine. Parents gave permission for their children to participate in thi...
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Hepatitis-Studies-at-the-Willowbrook-State-School-for-Children&cntnt01returnid=64

Biblio - KBL781 - 2009-11-19 10:56

Differing Perceptions of Risks and Benefits

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: A researcher conducts a non-therapeutic study with young adults with Tourette’s Syndrome and their families. The participants’ perceptions of risks and benefits differ from those of the researcher....
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Differing-Perceptions-of-Risks-and-Benefits&cntnt01returnid=64

Biblio - KBL781 - 2009-11-19 11:22

The Tuskegee Syphilis Study

Authors: DuBois, James M.
Publication Type: Case Study
Abstract: From 1932 through 1972, the U.S. Public Health Service enrolled African-American men in a non-therapeutic research study to observe the natural course of syphilis. Subjects were not told they had syphilis, nor were they treated for ...
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=The-Tuskegee-Syphilis-Study&cntnt01returnid=64

Biblio - KBL781 - 2009-11-19 10:51

Heightened Protections in Clinical Trials

Authors: DuBois, James M.
Publication Type: Case Study
Abstract: A researcher on a Institutional Review Board recommends additional protections for participants in clinical trials that pose any risk of severe decline or relapse....
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Heightened-Protections-in-Clinical-Trials&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 11:46

Huperzine

Authors: Dunn, Angela ; DuBois, James M.
Publication Type: Case Study
Abstract: While in the early stages of Alzheimer’s disease, Bernadette enrolls in an experimental drug study that will not begin until she is the late stages of the disease. Once Bernadette reaches the advanced stages of Alzheimer’s and her c...
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Huperzine&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 12:34

Live Organ Donors (Case 9)

Authors: Althaus, Ruth Ann ; Bellon, Christina ; Skipper, Robert Boyd ; Connolly, Peggy ; Brinkman, Anthony
Publication Type: Case Study
Abstract: When her niece Patty needed a liver transplant, Brigid Higgins figured that she was the right person to be an organ donor. After the donation, she experienced intense pain, and was suffering from multiple infections, and only after...
Year: 2008
URL: http://ethics.iit.edu/EEL/Case%209.pdf

Biblio - KBL781 - 2010-03-12 12:48

Forbidden Pleasure

Publication Type: Case Study
Abstract: When the mother of a mentally handicapped girl of fourteen is forced by poor health to place her daughter, Sophia, in assisted living, she worries about Sophia's sexual and reproductive anatomy. Sophia loves playing with her doll...
Year: 2009
URL: http://ethics.iit.edu/EEL/Forbidden%20Pleasure.pdf

Biblio - KBL781 - 2010-03-09 12:10

Museums Showing Live Surgeries

Authors: Potthast, Adam ; Diaz-Sprague, Raquel ; Miller, Richard ; Dodds, Rhainnon ; Jones, Jeremy ; Dillard, Brenda ; Matalski, Mark ; Carr, Edward ; Russell, Terry
Publication Type: Case Study
Abstract: The State University Museum, who has one of the nation's premier exhibits of the history of medicine, has historically shown edited videos common surgeries in their exhibit. As these films quickly go out of date, the curator of the...
Year: 2006
URL: http://ethics.iit.edu/EEL/Surgeries%20Shown%20Live%20in%20Educational%20Museum.pdf

Biblio - KBL781 - 2010-03-18 10:53

Shading the Truth in Seeking Informed Consent for Research Purposes

Authors: Bok, Sissela
Publication Type: Journal Article
Secondary Title: Kennedy Institute of Ethics Journal
Abstract: The author argues that what some researchers take to be a simple trade-off between minor violations of the truth in recruiting research participants, represents a profound miscalculations with far-reaching and cumulative ethical iss...
Year: 1995
DOI: 10.1353/ken.0.0116

Biblio - KBL781 - 2010-04-29 13:35

Rethinking informed consent in bioethics

Authors: O'Neill, Onora ; Manson, Neil C.
Publication Type: Book
Abstract: The authors of this volume look at the issue of trying to set defensible and feasible standards for informed consent in research. They look at the reasons why informed consent cannot be fully specific or fully explicit, and why more...
Year: 2007
URL: http://www.loc.gov/catdir/enhancements/fy0803/2007280642-t.html

Biblio - KBL781 - 2010-04-29 13:34

The many ways of saying yes and no: reflections on the research coordinator's role in recruiting research participants and obtaining informed consent.

Authors: Huntington, Ian ; Robinson, W
Publication Type: Journal Article
Secondary Title: IRB
Abstract: This article contains a qualitative report and reflections of a research coordinator working on recruiting research participants for two minimal risk studies involving children and adults with cystic fibrosis. She discusses the cha...
Year: 2007
URL: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=17847636

Biblio - KBL781 - 2010-04-29 13:34

Do Ethical Guidelines Give Guidance? A Critical Examination of Eight Ethics Regulations

Authors: H ; Eriksson, Stefan ; Helgesson, Gert
Publication Type: Journal Article
Secondary Title: Cambridge Quarterly of Healthcare Ethics
Abstract: As an example of how biomedical legislations and guidelines are not very useful tools for the development of ethical competence, the author looks at eight ethical guidelines on obtaining informed consent and shows how complications ...
Year: 2008
DOI: 10.1017/S0963180108080031

Biblio - KBL781 - 2010-04-29 13:33

Shading the truth in seeking informed consent for research purposes.

Biblio - KBL781 - 2010-04-29 13:32

Beyond consent : seeking justice in research

Authors: Kahn, Jeffrey P. ; Mastroianni, Anna C. ; Sugarman, Jeremy
Publication Type: Book
Abstract: Surveying the history of the use of human participants in research, this book examines aspects of justice in research. The author looks at the need to expand access to potentially beneficial research to all members of society, conc...
Year: 1998
URL: http://www.loc.gov/catdir/enhancements/fy0604/97044169-t.html

Biblio - KBL781 - 2010-05-07 11:20

The Ethics of Clinical Trials: To Inform or Not Inform? That Is the Question

Authors: Spence, Edward H.
Publication Type: Journal Article
Secondary Title: Professional Ethics: A Multidisciplinary Journal
Abstract: This article discusses what appears to be an inherent conflict in clinical trails. Should institutional ethics committees and physician-researchers have the responsibility to inform participants in clinical trials of the occurrence...
Year: 1998

Biblio - KBL781 - 2010-05-21 16:41

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