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Using Old Data to Explore New Research Questions

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: Investigators propose to use existing videotapes from a study on parent-child interactions for further research purposes. IRB members consider what to do about participant informed consent,...
Year: 1996
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Using-Old-Data-to-Explore-New-Research-Questions&cntnt01returnid=64

Biblio - KBL781 - 2009-11-23 14:01

Genomic Research Data: Open vs. Restricted Access

Authors: Resnik, David B.
Publication Type: Journal Article
Secondary Title: IRB: Ethics & Human Research
Abstract: The article discusses open access and restricted access approaches concerning genomic research data. Restricted access provides confidentiality for research participants, yet potentially decreases the pace of scientific progress. Op...
Year: 2010

Biblio - KBL781 - 2010-09-28 14:25

The Process Is the Product: A New Model for Multisite IRB Review of Data-Only Studies

Authors: Greene, Sarah M. ; Braff, Jeffrey ; Nelson, Andrew ; Reid, Robert J.
Publication Type: Journal Article
Secondary Title: IRB: Ethics & Human Research
Abstract: In the article the authors discuss a model for data-only research reviews by institutional review boards (IRBs) that are conducted by members of the Health Maintenance Organization Research Network (HMORN). The authors developed a p...
Year: 2010

Biblio - KBL781 - 2010-09-28 14:18

"You May Have Already Won…": An Examination of the Use of Lottery Payments in Research

Authors: Brown, Joseph S. ; Schonfeld, Toby L. ; Gordon, Bruce C.
Publication Type: Journal Article
Secondary Title: IRB: Ethics & Human Research
Abstract: This article presents information on the payment of human subjects to participate in research. Payment to human subjects still remains an unresolved ethical issue facing Institutional Review Boards (IRBs). According to an informal s...
Year: 2006

Biblio - KBL781 - 2010-09-28 14:16

Assessing the Quality of Human Research Protection Programs: The Experience at the Department of Veterans Affairs

Authors: Baochong, G. A. O. ; Smith, Karen ; Min-Fu, Tsan
Publication Type: Journal Article
Secondary Title: IRB: Ethics & Human Research
Abstract: The article discusses research participant protection programs within the U.S. Department of Veterans Affairs (VA). The protection of human subjects in research has been a priority of institutional review boards (IRBs) and the U.S. ...
Year: 2010

Biblio - KBL781 - 2010-09-28 14:23

Bipolar Mania and Capacity to Consent: Recommendations for Investigators and IRBs

Authors: Misra, Sahana ; Rosenstein, Donald ; Socherman, Robert ; Ganzini, Linda
Publication Type: Journal Article
Secondary Title: IRB: Ethics & Human Research
Abstract: The article presents a review of research on the decisional capacity of patients with mental health disorders, discusses how mania characteristics may affect research participation and provides recommendations for investigators and ...
Year: 2010

Biblio - KBL781 - 2010-09-28 14:23

Continuing Ethics Review Practices by Canadian Research Ethics Boards

Authors: Wilson, Donna M. ; Norton, Karleen
Publication Type: Journal Article
Secondary Title: IRB: Ethics & Human Research
Abstract: The article focuses on the significant role of research ethics boards (REBs) in reviewing the proposed research studies that evaluate the ethical and regulatory requirements governing research with humans. These include the determin...
Year: 2008

Biblio - KBL781 - 2010-09-28 14:24

Pregnancy Results

Publication Type: Case Study
Abstract: For her dissemination, Wilma plans to conduct a prospective pregnancy student that will involve couples trying to conceive. However, when reviewing Wilma's consent form, her advisor notices that it makes no mention of informing coup...
Year: 2001
URL: http://www.onlineethics.org/Resources/Cases/pregnancy.aspx

Biblio - KBL781 - 2010-10-21 16:41

Balancing Privacy Protections with Efficient Research: Institutional Review Boards and the Use of Certificates of Confidentiality

Authors: Currie, Peter M.
Publication Type: Journal Article
Secondary Title: IRB: Ethics & Human Research
Abstract: This article analyzes the role of Institutional Review Boards in mandating the use of Certificates of Confidentiality as one such additional safeguard to protect subject privacy. Certificates of Confidentiality are designed to preve...
Year: 2005

Biblio - KBL781 - 2010-09-28 14:17

PI or Private Investigator

Publication Type: Case Study
Abstract: This case highlights potential dilemmas encountered by postdoctoral fellows in a research setting. Does informed consent entitle a researcher to use a credit bureau to locate study participants after three years? It also explores th...
Year: 2001
URL: http://www.onlineethics.org/Resources/Cases/privatei.aspx

Biblio - KBL781 - 2010-10-21 16:41

Informed Consent for Research on Stored Blood and Tissue Samples: A Survey of Institutional Review Board Practices

Authors: White, Mary Terrell ; Gamm, Jennifer
Publication Type: Journal Article
Secondary Title: Accountability in Research: Policies & Quality Assurance
Abstract: Examines the variations in the institutional review boards in informed consent requirements for research on stored biological samples. Issues in genetic research ethics; Forms for the collection of biological samples; Types of infor...
Year: 2002
DOI: 10.1080/08989620210354

Biblio - KBL781 - 2011-01-25 18:22

A DNA Dilemma

Publication Type: Case Study
Abstract: When Mark, a graduate student working on an IRB-approved study looking at the genetics of breast cancer sees another student working with the blood samples of this study as part of a completely different project, he is not sure if t...
Year: 2002
URL: http://www.onlineethics.org/Resources/Cases/dilemma.aspx

Biblio - KBL781 - 2010-10-20 10:53

Report on Ethical and Policy Issues in Research Involving Human Participants

Authors: United States, National Bioethics Advisory Commission
Publication Type: Report
Secondary Title: Perspectives on the Professions
Abstract: This report put out in 2001 by the U.S. National Advisory Bioethics Commission looks at some of the major guidelines in place covering the use of human research subjects, and discusses a proposal for oversight, methods for ensuring ...
Year: 2001
URL: http://bioethics.georgetown.edu/pcbe/reports/past_commissions/nbac_human_part.pdf

Biblio - KBL781 - 2011-05-20 09:51

Conducting Research in Online Communities

Authors: Schrag, Brian ; Ryan, Marianne ; Marianne Ryan
Publication Type: Journal Article
Secondary Title: Teaching Ethics: The Journal of the Society for Ethics Across the Curriculum
Abstract: A case study about a sociologist studying the online behavior of members of virtual communities on the internet. The sociologist worries that if members of the online community know that they are being studied, they may act differen...
Year: 2008
URL: http://www.uvu.edu/ethics/seac/CS-MRyan-%20Conducting%20Research%20in%20Online%20Communities.pdf

Biblio - Anonymous - 2011-08-10 10:36

Conducting Survey Results with Adolescents with Anxiety Disorders

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: You are a researcher administering surveys to adolescents with anxiety disorders. The IRB asks you to change the information included on parental consent forms....
Year: 1996
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Conducting-Survey-Research-with-Adolescents-with-Anxiety-Disorde&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 11:02

Waiving Parental Permission

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: A researcher asks his institution’s IRB to grant a waiver of parental permission for a study on adolescent drug use and sexual activity....
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Waiving-Parental-Permission&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 16:23

Hazardous Consent Forms

Authors: Cohen, Lucy M. ; American Anthropological Association ; Cassell, Joan ; Weaver, Thomas
Publication Type: Case Study
Abstract: As part of a long-range investigation of the social and physiological effects of heroin, Jim Sanders, an anthropologist affiliated with a medical school, set up a study of pregnant women and their infants. The medical school Institu...
Year: 1996
URL: http://www.aaanet.org/publications/pubs/consentforms.cfm

Biblio - Anonymous - 2011-08-30 11:41