You are hereHuman Research Subjects / Privacy and Surveillance / Search

Search


Commercialization

Authors: Murray, Thomas H.
Publication Type: Case Study
Abstract: Should donors of human biological material for research be told of the potential profits companies and researchers may gain from this research?...
Year: 2006
URL: http://www.onlineethics.org/CMS/2963/modindex/resethpages/commercialization.aspx

Biblio - KBL781 - 2009-08-13 09:28

Ethical Considerations in the Testing of Biopharmaceuticals for Adventitious Agents

Authors: Woodward, Richard S.
Publication Type: Journal Article
Secondary Title: Science and Engineering Ethics
Abstract: Safety testing of biological pharmaceuticals is often carried out by contract testing laboratories which perform these tests on behalf of the drug's developer. These laboratories are confronted with a number of ethical issues relate...
Year: 1995
DOI: 10.1007/BF02628803

Biblio - KBL781 - 2009-09-14 13:52

Piercing the Veil: Ethical Issues in Ethnographic Research

Authors: Schrag, Brian
Publication Type: Journal Article
Secondary Title: Science & Engineering Ethics
Abstract: The author discusses some of the ethical issues that can often come up in the course of ethnographic research, and illustrates his points by relating an historical case of ethnographic research and the sustained moral outrage to the...
Year: 2009
DOI: 10.1007/s11948-008-9105-2

Biblio - KBL781 - 2009-09-14 13:31

Researchers` Duty to Warn

Authors: Schrag, Brian
Publication Type: Case Study
Abstract: The PI of an HIV/AIDS research project finds out that one of the positive participants is having unprotected sex with her unknowing boyfriend. He is faced with the dilemma of what to do since the interviews are supposed to be confid...
Year: 1999
URL: http://www.research.umn.edu/ethics/pdf/researchersdutytowarn.pdf

Biblio - KBL781 - 2009-10-08 12:40

Ethical and regulatory aspects of clinical research : readings and commentary

Authors: Emanuel, Ezekiel J.
Publication Type: Book
Abstract: A collection of essays including the following: U.S. medical researchers, the Nuremberg doctors trial, and the Nuremberg Code: a review of findings of the Advisory Committee on Human Radiation Experiments -- The Jewish Chronic Dise...
Year: 2003

Biblio - KBL781 - 2009-10-08 14:09

Education Research

Authors: American Physical Society
Publication Type: Case Study
Abstract: You have conducted research on the effectiveness of two different strategies for running recitation sections in large introductory physics courses. You would like to give a talk at the American Physical Society annual conference ab...
Year: 2009
URL: http://www.aps.org/programs/education/ethics/human/education-research.cfm

Biblio - KBL781 - 2009-11-11 16:35

Clinical Trial Data Headaches

Authors: Stanford Biodesign, Stanford University
Publication Type: Case Study
Abstract: You have developed a new device for the treatment of congestive heart failure and are working with a company you helped to create to complete the clinical trials of this device. Several of the other investigators at different insti...
Year: 2009
URL: http://biodesign.stanford.edu/bdn/ethicscases/8clinicaltrialdata.jsp

Biblio - KBL781 - 2009-11-13 13:57

Maintaining Privacy in Recruitment

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: You want to conduct research with recovering alcoholics and must consider how best to protect participant anonymity during recruitment....
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Maintaining-Privacy-in-Recruitment&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 16:17

"Informal" Surveys for Policy and Planning that "Trigger" Research Projects

Authors: American Sociological Association
Publication Type: Case Study
Abstract: A university committee sends out an informal survey to tenured faculty to help them gather relevant information for a decision they are making. When Professor Martindale is looking over the return surveys, he decides that the findi...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case58

Biblio - KBL781 - 2010-01-19 15:50

Legal Requests/Requirements for Confidential Data from Research Field Notes

Authors: American Sociological Association
Publication Type: Case Study
Abstract: A researcher conducting a participant-observation work-study of risk behavior in a local community social service organization is asked to hand over her field notes to police after a robbery occurs. The notes include information fr...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case48

Biblio - KBL781 - 2010-01-19 15:36

Respondent Confidentiality

Authors: American Sociological Association
Publication Type: Case Study
Abstract: Dr. Cultu is conducting a study of college student behavior, and spends quite a bit of time interviewing individuals who frequent the bars in the area. When a young woman student is murdered, he is asked by local police to have acce...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case37

Biblio - KBL781 - 2010-01-19 15:22

Confidentiality of Information Obtained during the Course of a Sociologist's Work

Authors: American Sociological Association
Publication Type: Case Study
Abstract: During a phone interview which is part of a large survey-based study, an interview hears what seems to be a man hitting his child. What should the interviewer and the sociologist in charge of the study do? Does confidentiality pro...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case34

Biblio - KBL781 - 2010-01-19 15:18

Enforcement Agencies and the Protection of Human Subjects

Authors: American Sociological Association
Publication Type: Case Study
Abstract: Judith Levy, the Principal Investigator on a project funded by the National Institute of Drug Abuse is evaluating the efficacy of providing community-based case management and peer support to reduce drug use and HIV transmission amo...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case35

Biblio - KBL781 - 2010-01-19 15:19

Email

Authors: American Sociological Association
Publication Type: Case Study
Abstract: Two researchers collaborating on a telephone survey send the names of telephone numbers of research participants to one another via email. Is this data that should be protected, and if so, how should it be sent? Includes expert co...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case42

Biblio - KBL781 - 2010-01-19 15:29

Privacy

Authors: American Sociological Association
Publication Type: Case Study
Abstract: A woman who agreed to participate in a state-sponsored study looking at the quality of care given at regional health clinics, is later contacted by a student of the professor who directed the first study, asking if she would agree t...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case43

Biblio - KBL781 - 2010-01-19 15:30

Confidentiality of Subject Data

Authors: American Sociological Association
Publication Type: Case Study
Abstract: During a state-sponsored study of day care facilities, a field worker observes an infant sleeping in a crib next to an open garbage can. The day care sites and employees have been assured that all information gathered was confident...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case46

Biblio - KBL781 - 2010-01-19 15:33

Electronic Transfer of Confidential Research Data

Authors: American Sociological Association
Publication Type: Case Study
Abstract: In preparing a report for a client on the results of open-ended interviews with managers and staff of a company, Joan refers to interviewees by title and emails and faxes the results of these interviews back and forth with her colle...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case49

Biblio - KBL781 - 2010-01-19 15:37

Stage Names and Deception: Two Examples

Authors: American Sociological Association
Publication Type: Case Study
Abstract: To help protect the identity of interviewers from harassment from study participants, and also to help protect the identity and feelings in participants in a different study looking at welfare recipients, a survey organization lets ...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case54

Biblio - KBL781 - 2010-01-19 15:45

Data Sharing, Informed Consent and Confidentiality

Authors: American Sociological Association
Publication Type: Case Study
Abstract: When a colleague asks a professor to share his research data he gathered on family ties among homeless people, the professor has concerns that the informed consent statement research participants signed did not notify them that the ...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case64

Biblio - KBL781 - 2010-01-19 15:56

Learning

Authors: Sieber, Joan E.
Publication Type: Case Study
Abstract: Dr. Jones collects oral histories from members of an ethnically diverse neighborhood as part of a study on aggressive behavior in children and would like to share the compiled document with community members to promote study buy-in....
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Learning&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 11:16

E-Research: Ethics, Security, Design, and Control in Psychological Research on the Internet

Authors: Nosek, Brian A. ; Banaji, Mahzarin R. ; Greenwald, Anthony G.
Publication Type: Journal Article
Secondary Title: Journal of Social Issues
Abstract: This article talks about the added ethical issues involved in Internet-based research, including the absence of researcher, potential exposure of confidential data and/or identity to a third party, confidentiality, and the security ...
Year: 2002
DOI: 10.1111/1540-4560.00254

Biblio - KBL781 - 2010-02-03 16:38

The ethics of conducting social-science research on the Internet

Authors: Hamilton, James C.
Publication Type: Journal Article
Secondary Title: Chronicle of Higher Education
Abstract: Probes ethical considerations in the use of the Internet for social science research. Lack of guidelines for responsible use of the Internet; Inconsistent use of safeguards for protecting participants in traditional research; Requir...
Year: 1999
URL: http://chronicle.com/article/The-Ethics-of-Conducting/19432/

Biblio - KBL781 - 2010-02-03 16:38

Ethical Issues of Online (Visual) Research

Authors: Pauwels, Luc
Publication Type: Journal Article
Secondary Title: Visual Anthropology
Abstract: The article discusses the ethical issues related to online visual research. The uses of the World Wide Web in anthropology are discussed, including a field of study, a research tool and a means of scholarly communication. The unobst...
Year: 2006
DOI: 10.1080/08949460600656691

Biblio - KBL781 - 2010-02-17 15:35

What Should IRBs Consider When Applying the Privacy Rule to Research?

Authors: Gerlach, Julie Waltz
Publication Type: Journal Article
Secondary Title: Kennedy Institute of Ethics Journal
Abstract: Discusses relevant regulation involving the protection of information about human participants in research, and participants' rights regarding the use of that information. ...
Year: 2002
DOI: 10.1353/ken.2002.0017

Biblio - KBL781 - 2010-04-29 13:33

Clinical Research in Low-Literacy Populations: Using Teach-Back to Assess Comprehension of Informed Consent and Privacy Information

Authors: Kripalani, Sunil ; Bengtzen, Rachel ; Henderson, Laura E. ; Jacobson, Terry A.
Publication Type: Journal Article
Secondary Title: IRB: Ethics & Human Research
Abstract: The article examines the role of patients' age, cognition, educational attainment and literacy level on their comprehension of informed consent and privacy information as required under the Privacy Rule of the Health Insurance Porta...
Year: 2008

Biblio - KBL781 - 2010-09-28 14:21