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Conflicting Obligations: Part II

Authors: Kodish, Eric
Publication Type: Case Study
Abstract: A scenario that covers ethical issues that arise when children are reluctant to continue participation in research studies....
Year: 2000
URL: http://www.onlineethics.org/CMS/2963/modindex/resethpages/conobl2.aspx

Biblio - KBL781 - 2009-08-13 09:30

Commercialization

Authors: Murray, Thomas H.
Publication Type: Case Study
Abstract: Should donors of human biological material for research be told of the potential profits companies and researchers may gain from this research?...
Year: 2006
URL: http://www.onlineethics.org/CMS/2963/modindex/resethpages/commercialization.aspx

Biblio - KBL781 - 2009-08-13 09:28

False hopes and best data: consent to research and the therapeutic misconception.

Authors: Appelbaum, PS ; Winslade, William J. ; Lidz, CW ; Roth, LH ; Benson, P
Publication Type: Journal Article
Secondary Title: Hastings Cent Report
Abstract: The author discusses some of the ethical issues that arise in clinical trials when a randomized, double-blind trial is being run for general knowledge about the treatments, but human participants believe they will personally benefit...
Year: 1987
URL: http://k30.im.wustl.edu/ethics/week3/Applebaum_therapeutic_misconception.pdf

Biblio - KBL781 - 2009-09-14 11:47

Informed Consent: Diminished Competency

Authors: Korenman, Stanley G. ; Shipp, Allan C.
Publication Type: Case Study
Abstract: Case poses questions regarding the recruitment of subjects with Alzheimer`s to test a drug with possible side effects, some of which can be serious....
Year: 1994
URL: http://www.research.umn.edu/ethics/pdf/InformedConsent.htm

Biblio - KBL781 - 2009-10-08 10:50

Informed consent in the Childrens Cancer Group: results of preliminary research.

Authors: Pentz, RD ; Kodish, ED ; Ruccione, K ; Buckley, J ; Noll, RB ; Lange, BJ
Publication Type: Journal Article
Secondary Title: Cancer
Abstract: The authors of this article studied the informed consent process and parents' and physicians reactions to this process at Children's Cancer Centers around the United States. Of parents interviewed about the informed consensus proje...
Year: 1998
URL: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=9635541
DOI: 10.1002/(SICI)1097-0142(19980615)82

Biblio - KBL781 - 2009-09-14 13:09

Ethical and regulatory aspects of clinical research : readings and commentary

Authors: Emanuel, Ezekiel J.
Publication Type: Book
Abstract: A collection of essays including the following: U.S. medical researchers, the Nuremberg doctors trial, and the Nuremberg Code: a review of findings of the Advisory Committee on Human Radiation Experiments -- The Jewish Chronic Dise...
Year: 2003

Biblio - KBL781 - 2009-10-08 14:09

Milgram's Obedience Studies

Authors: DuBois, James M.
Publication Type: Case Study
Abstract: In the early 1960’s, Stanley Milgram used deception to recruit subjects for a psychology experiment. Subjects were told that the research concerned the effect of punishment on learning, when in fact it studied obedience to authorit...
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Milgram-s-Obedience-Studies&cntnt01returnid=64

Biblio - KBL781 - 2009-11-19 10:47

Hepatitis Studies at the Willowbrook State School for Children with Mental Retardation

Authors: DuBois, James M.
Publication Type: Case Study
Abstract: From 1956 through 1971, residents at the Willowbrook State School for Children with Mental Retardation were infected with live hepatitis in order to develop a vaccine. Parents gave permission for their children to participate in thi...
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Hepatitis-Studies-at-the-Willowbrook-State-School-for-Children&cntnt01returnid=64

Biblio - KBL781 - 2009-11-19 10:56

Potential Inability to Provide Informed Consent Due to Substance Abuse

Authors: Fisher, Celia B.
Publication Type: Case Study
Abstract: The case discusses a research team conducting a study on HIV-related risk behaviors in community-dwelling adults with substance abuse disorders, and how the researchers develop creative ways to evaluate the consent of participants w...
Year: 2003
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Potential-Inability-to-Provide-Informed-Consent-Due-to-Substance&cntnt01returnid=64

Biblio - KBL781 - 2009-11-19 11:10

Differing Perceptions of Risks and Benefits

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: A researcher conducts a non-therapeutic study with young adults with Tourette’s Syndrome and their families. The participants’ perceptions of risks and benefits differ from those of the researcher....
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Differing-Perceptions-of-Risks-and-Benefits&cntnt01returnid=64

Biblio - KBL781 - 2009-11-19 11:22

Family Involvement in Informed Consent

Authors: Anderson, Emily E.
Publication Type: Case Study
Abstract: As principal investigator of a study on Mexican-American women and postpartum depression, you learn that many potential study participants want to discuss the study with their husbands before signing a consent form. ...
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Family-Involvement-in-Informed-Consent&cntnt01returnid=64

Biblio - KBL781 - 2009-11-19 11:40

The Tuskegee Syphilis Study

Authors: DuBois, James M.
Publication Type: Case Study
Abstract: From 1932 through 1972, the U.S. Public Health Service enrolled African-American men in a non-therapeutic research study to observe the natural course of syphilis. Subjects were not told they had syphilis, nor were they treated for ...
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=The-Tuskegee-Syphilis-Study&cntnt01returnid=64

Biblio - KBL781 - 2009-11-19 10:51

Heightened Protections in Clinical Trials

Authors: DuBois, James M.
Publication Type: Case Study
Abstract: A researcher on a Institutional Review Board recommends additional protections for participants in clinical trials that pose any risk of severe decline or relapse....
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Heightened-Protections-in-Clinical-Trials&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 11:46

Withholding Study Purpose

Authors: Anderson, Emily E. ; DuBois, James M.
Publication Type: Case Study
Abstract: A researcher wants to test an intervention to prevent child abuse among pregnant women in drug treatment programs but feels that revealing the true aim of the intervention may upset women already in difficult life circumstances (and...
Year: 2004
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=Withholding-Study-Purpose&cntnt01returnid=64

Biblio - KBL781 - 2009-11-20 12:31

A "Modest" Proposal on Alcohol Experimentation

Authors: Finn, Peter
Publication Type: Case Study
Abstract: Researchers want to examine the relative contributions of the pharmacological effects of alcohol and the belief that one has consumed alcohol on aggressive behavior in a controlled experiment. Researchers plan to deceive subjects re...
Year: 1995
URL: http://www.emhr.net/index.php?mact=casestudies,cntnt01,default,0&cntnt01what=studie&cntnt01alias=A-Modest-Research-Proposal-on-Alcohol-Experimentation&cntnt01returnid=64

Biblio - KBL781 - 2009-11-23 11:39

Confidentiality of Information Obtained during the Course of a Sociologist's Work

Authors: American Sociological Association
Publication Type: Case Study
Abstract: During a phone interview which is part of a large survey-based study, an interview hears what seems to be a man hitting his child. What should the interviewer and the sociologist in charge of the study do? Does confidentiality pro...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case34

Biblio - KBL781 - 2010-01-19 15:18

Enforcement Agencies and the Protection of Human Subjects

Authors: American Sociological Association
Publication Type: Case Study
Abstract: Judith Levy, the Principal Investigator on a project funded by the National Institute of Drug Abuse is evaluating the efficacy of providing community-based case management and peer support to reduce drug use and HIV transmission amo...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case35

Biblio - KBL781 - 2010-01-19 15:19

Withholding Information

Authors: American Sociological Association
Publication Type: Case Study
Abstract: In conducting a series of focus groups for a private foundation, the foundation asks that its name not be associated with the research as they are afraid it might prevent the focus group subjects from being honest if they know the s...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case45

Biblio - KBL781 - 2010-01-19 15:32

Confidentiality of Subject Data

Authors: American Sociological Association
Publication Type: Case Study
Abstract: During a state-sponsored study of day care facilities, a field worker observes an infant sleeping in a crib next to an open garbage can. The day care sites and employees have been assured that all information gathered was confident...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case46

Biblio - KBL781 - 2010-01-19 15:33

Informed Consent with Vulnerable Populations

Authors: American Sociological Association
Publication Type: Case Study
Abstract: In a study evaluating the delivery of in-home services for people with disabilities, the director of the study found that an extraordinary number of individuals asked to be interviewed were willing. Later the director of the survey...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case50

Biblio - KBL781 - 2010-01-19 15:39

Informed Consent with Pre-testing Convenience Samples

Authors: American Sociological Association
Publication Type: Case Study
Abstract: A research team interested in beginning a large, multi-site study of organizations and individuals involved in urban poverty, such as welfare employees, decides to do a small pre-test at a national convention. They receive permissio...
Year: 2009
URL: http://www.asanet.org/ethics/detail.cfm?id=Case53

Biblio - KBL781 - 2010-01-19 15:44

Testing Virtue

Authors: Carr, Sarah ; Dillard, Brenda ; Funke, Rhiannon Dodds ; Boxall, Susanna Flavia ; Diaz-Sprague, Raquel ; Carr, Edward ; Potthast, Adam ; Elliott, Deni ; Funke, Michael Brian ; Price, Connie
Publication Type: Case Study
Abstract: In recent years, social psychologists have begun to study how people overestimate their ability to act on their principles. In the Good Samaritan Experiment, seminary students participating in the project were asked to prepare and ...
Year: 2009
URL: http://ethics.iit.edu/EEL/Testing%20Virtue.pdf

Biblio - KBL781 - 2010-03-09 12:11

Ethical Research in Delirium: Arguments for Including Decisionally Incapacitated Subjects

Authors: Macdonald, Alastair ; Martin, Finbarr ; Treloar, Adrian ; Adamis, Dimitrios
Publication Type: Journal Article
Secondary Title: Science and Engineering Ethics
Abstract: This article describes a study in which important findings were obtained in a delirium study by using an informal assessment of mental capacity, and, in those who lacked capacity, obtaining consent later when or if capacity returned...
Year: 2010
DOI: 10.1007/s11948-009-9120-y

Biblio - KBL781 - 2010-02-16 14:33

Shading the Truth in Seeking Informed Consent for Research Purposes

Authors: Bok, Sissela
Publication Type: Journal Article
Secondary Title: Kennedy Institute of Ethics Journal
Abstract: The author argues that what some researchers take to be a simple trade-off between minor violations of the truth in recruiting research participants, represents a profound miscalculations with far-reaching and cumulative ethical iss...
Year: 1995
DOI: 10.1353/ken.0.0116

Biblio - KBL781 - 2010-04-29 13:35

Rethinking informed consent in bioethics

Authors: O'Neill, Onora ; Manson, Neil C.
Publication Type: Book
Abstract: The authors of this volume look at the issue of trying to set defensible and feasible standards for informed consent in research. They look at the reasons why informed consent cannot be fully specific or fully explicit, and why more...
Year: 2007
URL: http://www.loc.gov/catdir/enhancements/fy0803/2007280642-t.html

Biblio - KBL781 - 2010-04-29 13:34