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Limited Relevance of the Right Not to Know - Reflections on a Screening Study
| Title | Limited Relevance of the Right Not to Know - Reflections on a Screening Study |
| Publication Type | Journal Article |
| Year of Publication | 2007 |
| Authors | Helgesson, Gert, Eriksson Stefan, and Swartling Ulrica |
| Journal | Accountability in Research: Policies & Quality Assurance |
| Volume | 14 |
| Issue | 3 |
| Pagination | 197-209 |
| Type of Article | Article |
| Publication Language | eng |
| ISSN Number | 08989621 |
| Accession Number | 25727403 |
| Keywords | Autonomy , BIOETHICS , children , DIABETES , HEALTH , Human , Human Research Subjects , Informed Consent , Medical , MEDICINE , population , Right |
| Abstract | The right not to know personal health-related information has been included in prominent human rights documents and subsequently in national legislation since the middle of the 1990s. This article argues against giving the right not to know such a prominent position. The main focus of the article is on empirical data from a prospective population screening for Type 1 diabetes. Data indicate that research participants are not as autonomous as is generally assumed by the defenders of the right not to know. |
| Notes | Helgesson, Gert 1; Email Address: gert.helgesson@bioethics.uu.se; Eriksson, Stefan 1; Swartling, Ulrica 2; Affiliations: 1: Centre for Bioethics at Karolinska Institutet and Uppsala University. Uppsala. Sweden; 2: The ABIS Research Group, Division of Paediatrics and Diabetes Research Centre, Department of Molecular and Clinical Medicine, Faculty of Health Sciences, Linköping University. Linköping. Sweden; Issue Info: Jul-Sep2007, Vol. 14 Issue 3, p197; Subject Term: HUMAN rights; Subject Term: HEALTH; Subject Term: DIABETES; Subject Term: MEDICAL screening; Subject Term: BIOETHICS; Author-Supplied Keyword: autonomy; Author-Supplied Keyword: children; Author-Supplied Keyword: health; Author-Supplied Keyword: population screening; Author-Supplied Keyword: right not to know; NAICS/Industry Codes: 621999 All Other Miscellaneous Ambulatory Health Care Services; Number of Pages: 13p; Illustrations: 1 Chart; Document Type: Article |
| DOI | 10.1080/08989620701456322 |
| Short Title | Limited Relevance of the Right Not to Know - Reflections on a Screening Study |
