Ethics in Population-Based Genetic Research

TitleEthics in Population-Based Genetic Research
Publication TypeJournal Article
Year of Publication2004
AuthorsDeCamp, M, Sugarman, J
JournalAccountability in Research: Policies & Quality Assurance
Volume11
Issue1
Pagination1-26
Type of ArticleArticle
Publication Languageeng
ISSN Number08989621
Accession Number12453869
KeywordsBIOETHICS , EPIDEMIOLOGY , ethics , GENETICS , Human , Human Research Subjects , Informed , MEDICINE , population , PUBLIC , research , SCIENCE
AbstractThis article reviews the growing literature on genetics research and ethics to describe some of the fundamental ethical issues in population-based genetics research, including research design, recruitment and informed consent, and dealing with research results. Its focus is on areas where consensus is forming and where future work is needed.
NotesDeCamp, Matthew 1; Sugarman, Jeremy 2; Email Address: jsugar1@jhmi.edu; Affiliations: 1: Duke University Medical Scientist Training Program School of Medicine and Department of Philosophy Durham, North Carolina, USA.; 2: Phoebe R. Berman Bioethics Institute Johns Hopkins University Baltimore, Maryland, USA.; Issue Info: Jan2004, Vol. 11 Issue 1, p1; Thesaurus Term: RESEARCH; Thesaurus Term: HUMAN services; Subject Term: GENETICS; Subject Term: POPULATION research; Subject Term: EPIDEMIOLOGY; Subject Term: MEDICINE -- Study & teaching; Subject Term: PUBLIC health; Author-Supplied Keyword: ethics, population genetics, genetics research, informed consent, research standards, research subjects; NAICS/Industry Codes: 525120 Health and Welfare Funds; Number of Pages: 26p; Document Type: Article
DOI10.1080/08989620490280221
Short TitleEthics in Population-Based Genetic Research
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