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Ethics in Population-Based Genetic Research
| Title | Ethics in Population-Based Genetic Research |
| Publication Type | Journal Article |
| Year of Publication | 2004 |
| Authors | DeCamp, Matthew, and Sugarman Jeremy |
| Journal | Accountability in Research: Policies & Quality Assurance |
| Volume | 11 |
| Issue | 1 |
| Pagination | 1-26 |
| Type of Article | Article |
| Publication Language | eng |
| ISSN Number | 08989621 |
| Accession Number | 12453869 |
| Keywords | BIOETHICS , EPIDEMIOLOGY , ethics , GENETICS , Human , Human Research Subjects , Informed , MEDICINE , population , PUBLIC , research , SCIENCE |
| Abstract | This article reviews the growing literature on genetics research and ethics to describe some of the fundamental ethical issues in population-based genetics research, including research design, recruitment and informed consent, and dealing with research results. Its focus is on areas where consensus is forming and where future work is needed. |
| Notes | DeCamp, Matthew 1; Sugarman, Jeremy 2; Email Address: jsugar1@jhmi.edu; Affiliations: 1: Duke University Medical Scientist Training Program School of Medicine and Department of Philosophy Durham, North Carolina, USA.; 2: Phoebe R. Berman Bioethics Institute Johns Hopkins University Baltimore, Maryland, USA.; Issue Info: Jan2004, Vol. 11 Issue 1, p1; Thesaurus Term: RESEARCH; Thesaurus Term: HUMAN services; Subject Term: GENETICS; Subject Term: POPULATION research; Subject Term: EPIDEMIOLOGY; Subject Term: MEDICINE -- Study & teaching; Subject Term: PUBLIC health; Author-Supplied Keyword: ethics, population genetics, genetics research, informed consent, research standards, research subjects; NAICS/Industry Codes: 525120 Health and Welfare Funds; Number of Pages: 26p; Document Type: Article |
| DOI | 10.1080/08989620490280221 |
| Short Title | Ethics in Population-Based Genetic Research |
