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The Inalienable Right to Withdraw from Research
| Title | The Inalienable Right to Withdraw from Research |
| Publication Type | Journal Article |
| Year of Publication | 2010 |
| Authors | McConnell, Terrance |
| Journal | Journal of Law, Medicine & Ethics |
| Volume | 38 |
| Issue | 4 |
| Pagination | 840-846 |
| Date Published | Winter2010 |
| Type of Article | Article |
| Publication Language | eng |
| ISSN Number | 10731105 |
| Accession Number | 55450978 |
| Keywords | Clinical , DECISION , etc. , Human Research Subjects , Informed , Informed Consent , MEDICINE , patient , Patients , PSYCHOLOGY , PUBLIC , research , SCIENCE , tissues , Transplantation , United |
| Abstract | Most codes of research ethics and the practice of Institutional Review Boards (IRBs) allow human subjects to withdraw from research at any time. Consent forms invariably make a statement to this effect. So understood, a subject's right to withdraw from research is inalienable; she cannot, through her consent, surrender this right. However, some critics have argued that in selected circumstances, human subjects in the research are morally obligated not to withdraw. This includes when there will be great benefits lost if subjects are permitted to withdraw before the completion of the protocol, or if there will be harm to third parties if subjects withdraw from the experiment. This paper defends the inalienable right to withdraw from research in both cases, outlining reasons why and why upholding this right is so important. |
| Notes | McConnell, Terrance 1; Affiliation: 1: University of North Carolina at Greensboro; Source Info: Winter2010, Vol. 38 Issue 4, p840; Subject Term: PUBLIC health laws; Subject Term: PUBLIC health -- United States; Subject Term: CLINICAL trials; Subject Term: DECISION making; Subject Term: INFORMED consent (Medical law); Subject Term: RESEARCH -- Methodology; Subject Term: MEDICINE -- Research; Subject Term: PATIENTS; Subject Term: PUBLIC health surveillance; Subject Term: TRANSPLANTATION of organs, tissues, etc.; Subject Term: PATIENTS -- Civil rights; Subject Term: PATIENT dropouts; Subject Term: UNITED States; NAICS/Industry Codes: 541712 Reseach and Development in the Physical, Engineering, and Life Sciences (except Biotechnology); Number of Pages: 7p; Document Type: Article |
| DOI | 10.1111/j.1748-720X.2010.00537.x |
| Short Title | The Inalienable Right to Withdraw from Research |
