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Transforming Genetic Research Practices with Marginalized Communities: A Case for Responsive Justice
| Title | Transforming Genetic Research Practices with Marginalized Communities: A Case for Responsive Justice |
| Publication Type | Journal Article |
| Year of Publication | 2008 |
| Authors | Goering, Sara, Holland Suzanne, and Fryer-Edwards Kelly |
| Journal | Hastings Center Report |
| Volume | 38 |
| Issue | 2 |
| Pagination | 43-53 |
| Type of Article | Article |
| Publication Language | eng |
| ISSN Number | 00930334 |
| Accession Number | 31509416 |
| Keywords | 1921-2002 , DISTRIBUTIVE , experimental , GENETICS , John , RAWLS , RECOGNITION , RESPONSIBILITY |
| Abstract | The article presents a case for responsive justice in genetics research with marginalized communities. In doing so, it considers the application of John Rawls' concept of distributive justice in genetic medicine and research. Standard research models use distributive justice in designing and conducting research. However, this approach often excludes underserved and marginalized populations in the process. Recognition, redistribution and responsibility are the guiding principles to creating responsive justice in genetics research with marginalized communities. |
| Notes | Goering, Sara Holland, Suzanne Fryer-Edwards, Kelly; Source Info: Mar2008, Vol. 38 Issue 2, p43; Subject Term: GENETICS -- Research; Subject Term: DISTRIBUTIVE justice; Subject Term: EXPERIMENTAL design; Subject Term: RECOGNITION (Psychology); Subject Term: RESPONSIBILITY; People: RAWLS, John, 1921-2002; Number of Pages: 11p; Document Type: Article |
| DOI | 10.1353/hcr.2008.0027 |
