Transforming Genetic Research Practices with Marginalized Communities: A Case for Responsive Justice

TitleTransforming Genetic Research Practices with Marginalized Communities: A Case for Responsive Justice
Publication TypeJournal Article
Year of Publication2008
AuthorsGoering, S, Holland, S, Fryer-Edwards, K
JournalHastings Center Report
Volume38
Issue2
Pagination43-53
Type of ArticleArticle
Publication Languageeng
ISSN Number00930334
Accession Number31509416
Keywords1921-2002 , DISTRIBUTIVE , experimental , GENETICS , John , RAWLS , RECOGNITION , RESPONSIBILITY
AbstractThe article presents a case for responsive justice in genetics research with marginalized communities. In doing so, it considers the application of John Rawls' concept of distributive justice in genetic medicine and research. Standard research models use distributive justice in designing and conducting research. However, this approach often excludes underserved and marginalized populations in the process. Recognition, redistribution and responsibility are the guiding principles to creating responsive justice in genetics research with marginalized communities.
NotesGoering, Sara Holland, Suzanne Fryer-Edwards, Kelly; Source Info: Mar2008, Vol. 38 Issue 2, p43; Subject Term: GENETICS -- Research; Subject Term: DISTRIBUTIVE justice; Subject Term: EXPERIMENTAL design; Subject Term: RECOGNITION (Psychology); Subject Term: RESPONSIBILITY; People: RAWLS, John, 1921-2002; Number of Pages: 11p; Document Type: Article
DOI10.1353/hcr.2008.0027
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