Disclosure Issues in Neuroscience Research

TitleDisclosure Issues in Neuroscience Research
Publication TypeJournal Article
Year of Publication2008
AuthorsParker, LS, Kienholz, ML
JournalAccountability in Research: Policies & Quality Assurance
Volume15
Issue4
Pagination226-241
Type of ArticleArticle
Publication Languageeng
ISSN Number08989621
Accession Number34976181
KeywordsConsent , Disclosure , ethics , incidental , Informed , Medical , neuroethics , neuroscience , Neurosciences , research , RISK
AbstractThe authors discuss issues of disclosure arise in neuroscientific research, and how the possibility of disclosure of incidental findings and/or research results may raise informational expectations on the part of subjects and may alter a study's risk:benefit ratio. The authors recommend that the informed consent process address this potential consequence of research participation, and specify the conditions under which particular types of information will be offered, the conditions under which information may not be disclosed, and any provisions for helping subjects make sense of the information to be disclosed.
NotesParker, Lisa S. 1; Email Address: lisap@pitt.edu; Kienholz, Michelle L. 2; Affiliations: 1: Center for Bioethics and Health Law, University of Pittsburgh, Pittsburgh, Pennsylvania, USA; 2: University of Pittsburgh, Pittsburgh, Pennsylvania, USA; Issue Info: Oct-Dec2008, Vol. 15 Issue 4, p226; Thesaurus Term: RESEARCH; Thesaurus Term: DISCLOSURE of information; Thesaurus Term: RISK assessment; Subject Term: NEUROSCIENCES; Subject Term: CONSENT (Law); Subject Term: MEDICAL care; Author-Supplied Keyword: disclosure; Author-Supplied Keyword: ethics; Author-Supplied Keyword: incidental findings; Author-Supplied Keyword: informed consent; Author-Supplied Keyword: neuroethics; Author-Supplied Keyword: neuroscience research; Author-Supplied Keyword: research results; Number of Pages: 16p; Document Type: Article
DOI10.1080/08989620802388697
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