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|Publication Type||Case Study|
|Year of Publication||2004|
|Authors||Dunn, Angela, and DuBois James M.|
|Publisher||Ethics in Mental Health Research|
|Keywords||(competence) , (competence), , (including , addictive , and , Assent , Assent, , Capacity , Capacity, , DECISION-MAKING , determination , developmental , disabilities) , disorders , disorders, , HEALTH , Mental , of; , participants , Permission; , surrogate , with|
While in the early stages of Alzheimer’s disease, Bernadette enrolls in an experimental drug study that will not begin until she is the late stages of the disease. Once Bernadette reaches the advanced stages of Alzheimer’s and her cognitive capacities are impaired, her family members learn of the study and file a complaint with the hospital’s IRB, claiming that Bernadette never would have agreed to participate in this study.
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