Forbidden Knowledge: A Case Study with Commentaries Exploring Ethical Issues and Genetic Research

TitleForbidden Knowledge: A Case Study with Commentaries Exploring Ethical Issues and Genetic Research
Publication TypeJournal Article
Year of Publication2003
AuthorsSchrag, B, Love-Gregory, L, Muskavitch, KMT
JournalScience and Engineering Ethics
Volume9
Issue3
Pagination409-418
Publication Languageeng
ISBN Number1353-3452
AbstractThis case is part of a series of case studies used as an exercise within a program on research ethics education. The case involves research on genetic birth defects in a culturally distinct, closed religious community in which elders speak for the community. The case raises ethical issues of informed consent in such a setting; of collaboration with the community; of conflicts between the researchers' responsibilities to the community as a whole and to individual subjects; of the impact of the researcher's findings on the practices and values of the community and issues regarding how the researchers share findings with subjects and how the findings are stored.
Notes(& others)Cover Date: July 2003.Source Info: 9(3), 409-418. Language: English. Journal Announcement: 38-1. Subject: CASE STUDY; ENGINEERING; ETHICS; GENETICS; KNOWLEDGE; RESEARCH. Update Code: 20090226.
DOI10.1007/s11948-003-0037-6
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