Privacy in Privacy and Progress in Whole Genome Sequencing

TitlePrivacy in Privacy and Progress in Whole Genome Sequencing
Publication TypeTeaching Module
Year of Publication2014
AuthorsStates, PCommission
Pagination20 p.
Date Published12/2014
PublisherUnited States. Presidential Commission for the Study of Bioethical Issues
AbstractIn its report Privacy and Progress in Whole Genome Sequencing (Privacy and Progress), the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) highlights an important tension surrounding the advancement of the science of whole genome sequencing (i.e., determining the order of base pairs in an entire genome): how to reconcile the potential for important medical benefits to society at large with the privacy interests of individuals who choose to share their whole genome sequence data. This module includes readings, discussion questions, problem-based learning, and classroom exercises  based on this report and topic.
URLhttp://bioethics.gov/sites/default/files/Privacy%20-%20Privacy%20and%20Progress%20-%2012-1-14.pdf

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