Strategies for Consulting with the Community: The Cases of Four Large-Scale Genetic Databases

TitleStrategies for Consulting with the Community: The Cases of Four Large-Scale Genetic Databases
Publication TypeJournal Article
Year of Publication2004
AuthorsGodard, B, Marshall, J, Laberge, C
JournalScience and Engineering Ethics
Volume10
Pagination457-477
Publication Languageeng
AbstractThis paper is a review of how three different research projects went about gaining community support and permission to produce large scale genetic databases. The Iceland Health Sector Database and Estonian Genome Project have followed a "communication approach' in order to address public concerns, whereas, UK Biobank and Quebec CARTaGENE have chosen a "partnership approach" to involve the public in decision-making processes.
Notes(& others) Cover Date: July 2004.Source Info: 10(3), 457-477. Language: English. Journal Announcement: 39-2. Subject: COMMUNITY; CONSULTATION; DATABASE; ETHICS; GENETICS; POPULATION. Update Code: 20090226.
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