Role Play : Genome Data Breach

TitleRole Play : Genome Data Breach
Publication TypeCase Study
Year of Publication2013
AuthorsDuBois, JM
Corporate AuthorsUnited States, Office of Public Health and Science, Office of Research Integrity
Date Published10/2013
PublisherUnited States, Department of Health and Human Services, Office of Research Integrity
Publication LanguageEnglish
KeywordsConfidentiality , data management , GENETICS , Human Research Subjects , SCIENCE
AbstractThis role play involves an assistant professor who places his/her data on NIH’s database of genotypes and phenotypes (dbGaP); a leading researcher who violates the one-year embargo on use of the data and published an article using the assistant professor’s data before s/he had the opportunity to do so; and an NIH official who is in charge of the dbGaP database.
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