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GENETICS
Evaluating Oversight Systems for Emerging Technologies: A Case Study of Genetically Engineered Organisms, Kuzma, Jennifer, Najmaie Pouya, and Larson Joel , Journal of Law, Medicine & Ethics, Winter2009, Volume 37, Issue 4, p.546-586, (2009) Abstract

Kuzma, Jennifer 1 Najmaie, Pouya 2 Larson, Joel 3; Affiliation: 1: Associate Professor and Area Chair of the Science, Technology, and Environmental Policy Program at the Humphrey Institute of Public Affairs at the University of Minnesota. 2: M.S. candidate in Science, Technology, and Environmental Policy at the Humphrey Institute of Public Affairs at the University of Minnesota. 3: Graduate of the MPP program in Science, Technology, and Environmental Policy at the Humphrey Institute of Public Affairs at the University of Minnesota and Presidential Management Fellow.; Source Info: Winter2009, Vol. 37 Issue 4, p546; Subject Term: NANOTECHNOLOGY; Subject Term: GENETIC engineering; Subject Term: RESEARCH; Subject Term: LEGISLATIVE oversight; Subject Term: AGRICULTURAL technology; Subject Term: BIOTECHNOLOGY; Subject Term: GOVERNMENT policy; Subject Term: UNITED States; Number of Pages: 41p; Illustrations: 4 Diagrams, 4 Charts, 3 Graphs; Document Type: Article

Informing Patients of Test Results , Ladenson, Robert , 02/1996, (1996) Abstract

Case from the February 24, 1996 Intercollegiate Ethics Bowl. Copyright Robert Ladenson, Center for the Study of Ethics at the Illinois Institute of Technology, 1996.

Maryland's Effort to Regulate Ethically Sensitive Research: A Step in the Right Direction, Schwartz, Jack , Accountability in Research: Policies & Quality Assurance, Volume 7, Issue 2-4, p.169, (1999) Abstract

Schwartz, Jack; Issue Info: Dec99, Vol. 7 Issue 2-4, p169; Thesaurus Term: RESEARCH; Subject Term: MORAL & ethical aspects; Subject Term: LAW & legislation; Subject: MARYLAND; Subject: UNITED States ; Company/Entity: UNITED States. National Bioethics Advisory Commission; Number of Pages: 6p; Document Type: Article; Full Text Word Count: 2061

Genetic Research Involving Human Biological Materials: A Need to Tailor Consent Forms, Hull, Sara Chandros, Gooding Holly, Klein Alison P., Warshauer-Baker Esther, Metosky Susan, and Wilfond Benjamin S. , IRB: Ethics & Human Research, Volume 26, Issue 3, p.1-7, (2004) Abstract

Hull, Sara Chandros 1 Gooding, Holly 2 Klein, Alison P. 3 Warshauer-Baker, Esther 4 Metosky, Susan 5 Wilfond, Benjamin S. 6; Affiliation: 1: Head of Research Ethics Section, Social and Behavioral Research Branch, National Human Genome Research Institute, NIH. 2: University of California San Francisco. 3: Research Fellow, Statistical Genetics Section of Inherited Disease Research Branch, NHGRI, NIH. 4: Postbaccalaureate Fellow, Social and Behavioral Branch, NHGRI, NIH. 5: Research Compliance Coordinator, Old Dominion University. 6: Head of Bioethics and Social Policy Section, Social and Behavioral Research Branch, NHGRI, NIH.; Source Info: May/Jun2004, Vol. 26 Issue 3, p1; Subject Term: GENETICS -- Research; Subject Term: HUMAN experimentation in medicine; Subject Term: INSTITUTIONAL review boards (Medicine); Subject Term: DECISION making; Subject Term: PROBLEM solving; Subject Term: MEDICAL ethics committees; Number of Pages: 7p; Document Type: Article

Wanted: Human Biospecimens, Maschke, Karen J. , Hastings Center Report, Volume 40, Issue 5, p.21-23, (2010) Abstract

Hastings Center ReportAccession Number: 53996806; MASCHKE, KAREN J.; Source Info: Sep2010, Vol. 40 Issue 5, p21; Subject Term: ESSAYS; Subject Term: CLINICAL medicine -- Research; Subject Term: DONATION of organs, tissues, etc.; Subject Term: GENETICS; Subject Term: INFORMED consent (Medical law); Subject Term: MEDICAL ethics; Subject Term: PRIVACY; Subject Term: HUMAN beings; Subject Term: ETHICS; Number of Pages: 3p; Document Type: Essay

Do You Really Know What You're Eating?, Shew, Wayne, and Reese Mary Celeste , 06/2007, (2007) Abstract

Case from the National Center for Case Study Teaching in Science, University of Buffalo. http://sciencecases.lib.buffalo.edu/cs/

The dispersion of genetic technologies and the law, Clayton, Ellen Wright , Hastings Center Report, Volume 25, Issue 3, p.S13-S15, (1995) Abstract

Clayton, Ellen Wright; Source Info: May/Jun95, Vol. 25 Issue 3, pS13; Subject Term: GENETICS; Subject Term: GOVERNMENT policy; Subject Term: UNITED States; Number of Pages: 3p; Document Type: Article; Full Text Word Count: 1954

The Raelians : Visionary Science or Quackery?, , (Submitted) Abstract

Case from the National Center for Case Study Teaching in Science, University of Buffalo. http://sciencecases.lib.buffalo.edu/cs/

Reprogenetics and Public Policy : Reflections and Recommendations, Parens, Eric, and Knowles Lori P. , Hastings Center Report, Volume 33, Issue 4, p.S3-s5, (2003) Abstract

Parens, Eric Knowles, Lori P.; Source Info: Jul/Aug2003, Vol. 33 Issue 4, pS3; Subject Term: EMBRYOLOGY; Subject Term: HUMAN reproductive technology; Subject Term: REPRODUCTIVE technology; Subject Term: GENETICS; Subject Term: MEDICAL personnel; Subject Term: BIOETHICS; Number of Pages: 3p; Document Type: Article

Ethics and Research Assessing the Relative Roles of Genes and the Environment , DeCamp, Matthew, and Sugarman Jeremy , Accountability in Research: Policies & Quality Assurance, Volume 11, Issue 3/4, p.161-182, (2004) Abstract

DeCamp, Matthew 1; Sugarman, Jeremy 2; Email Address: jsugarm1@jhmi.edu; Affiliations: 1: Duke University Medical Scientist Training Program, School of Medicine and Department of Philosophy Durham, North Carolina, USA; 2: Phoebe R. Berman Bioethics Institute Johns Hopkins University Baltimore, Maryland, USA; Issue Info: Jul2004, Vol. 11 Issue 3/4, p161; Subject Term: NATURE & nurture; Subject Term: GENETICS; Subject Term: HEREDITY; Subject Term: HUMAN beings -- Effect of environment on; Subject Term: MEDICAL ethics; Subject Term: BIOETHICS; Author-Supplied Keyword: environmental genetics; Author-Supplied Keyword: ethics; Author-Supplied Keyword: genetic research; Author-Supplied Keyword: population genetics; Author-Supplied Keyword: research standards; Author-Supplied Keyword: research subjects; Number of Pages: 22p; Document Type: Article

Genomic patenting and the utility requirement, Calvert, Jane , New Genetics & Society, Volume 23, Issue 3, p.301-312, (2004) Abstract

Calvert, Jane 1; Email Address: J.Calvert@exeter.ac.uk; Affiliation: 1: ESRC Centre for Genomics in Society, University of Exeter, UK; Source Info: Dec2004, Vol. 23 Issue 3, p301; Subject Term: GENETICS -- Research; Subject Term: GENOMES; Subject Term: PATENT laws & legislation; Subject Term: NEW products; Subject Term: INTELLECTUAL property; Subject Term: BIOLOGY; Number of Pages: 12p; Document Type: Article

Redesigning humans : our inevitable genetic future, Stock, Gregory , Boston, p.277 p., (2002) Abstract

22 cm.The last human -- Our commitment to our flesh -- Setting the stage -- Superbiology -- Catching the wave -- Targets of design -- Ethics and ideology -- The battle for the future -- The enhanced and the unenhanced -- Appendices.Table of contentshttp://catdir.loc.gov/catdir/toc/hm021/2001051890.htmlPublisher descriptionhttp://catdir.loc.gov/catdir/description/hm021/2001051890.htmlContributor biographical informationhttp://catdir.loc.gov/catdir/enhancements/fy0736/2001051890-b.htmlIncludes bibliographical references (p. [245]-259) and index.Gregory Stock. More Records: Show record informationInternet resource (url)Book; Internet Resource

Handling (mis?)appropriated data, , Nature, Volume 409, Issue 6821, p.649, (2001) Abstract

Source Info: 2/8/2001, Vol. 409 Issue 6821, p649; Subject Term: SCIENCE publishing; Subject Term: JOURNALISTIC ethics; Subject Term: SCIENTISTS; Subject Term: HUMAN genome; Subject Term: PROFESSIONAL ethics; Subject Term: MORAL & ethical aspects; Number of Pages: 1/2p; Document Type: Article

Genetics and the moral mission of health insurance, Murray, Thomas H. , Hastings Center Report, Volume 22, Issue 6, p.12-17, (1992) Abstract

Source Info: Nov/Dec92, Vol. 22 Issue 6, p12; Subject Term: MEDICAL care, Cost of; Number of Pages: 6p; Document Type: Article; Full Text Word Count: 5203

Make a Life to Save a Life, Brickman, Peggy , 11/2009, (2009) Abstract

Case from the National Center for Case Study Teaching in Science, University at Buffalo. http://sciencecases.lib.buffalo.edu/cs/

Liberal Eugenics & Human Nature Against Habermas, Fenton, Elizabeth , Hastings Center Report, Volume 36, Issue 6, p.35-42, (2006) Abstract

Fenton, Elizabeth; Source Info: Nov/Dec2006, Vol. 36 Issue 6, p35; Subject Term: EUGENICS; Subject Term: CLONING; Subject Term: GENETICS; Subject Term: GENETIC engineering; Subject Term: EUTHENICS; Number of Pages: 8p; Document Type: Article

Prenatal Genetic Testing, Connolly, Peggy, Althaus RuthAnn, Brinkman Anthony, Ross Jeri, and Skipper Robert Boyd , 01/2013, (2013) Abstract

© Association for Practical and Professional Ethics 2013
Case from the February 28, 2013 Intercollegiate Ethics Bowl

You take the high road, Yesley, Michael S. , Hastings Center Report, Volume 23, Issue 4, p.3, (1993) Abstract

Yesley, Michael S.; Source Info: Jul/Aug93, Vol. 23 Issue 4, p3; Subject Term: GENETICS; Subject Term: CONGRESSES; Number of Pages: 2p; Document Type: Article; Full Text Word Count: 328

Principles and practice of clinical research, Gallin, John I. , p.430 p., (2007) Abstract

ill. ; 29 cm.A historical perspective on clinical research / John I. Gallin -- Ethical principles in clinical research / Christine Grady -- Researching n bioethical question / Ezekiel J. Emanuel -- Integrity in research: individual and institutional responsibility / Alan N. Schechter -- Institutional review boards / Alison Wichman and Alan L. Sandler -- Data and safety monitoring boards / Lawrence M. Friedman -- Data and clinical management clinical trials / Jane Cassidy -- Unanticipated risk in clinical research / Stephen E. Straus -- The regulation of drugs and biological products by the Food and Drug Administration / Kathryn C. Zoon and Robert A. Yetter -- Legal issues / Patricia A. Kvochak -- NIH policy on the inclusion of women and minorities as subjects of clinical research / Eugene G. Hayunga and Vivian W. Pinn -- An introduction to biostatistics: randomizations, hypothesis testing, and sample size / Paul S. Albert and Craig B. Borkowf -- Design and conduct of observation studies and clinical trials / Teri A. Manolio -- Small clinical trials / Mitchell B. Max -- Large clinical trials: clinical research institutes / Robert M. Califf -- Using secondary data in statistical analysis / Bradley D. Freeman, Eric P. Gerstenberger, Steven Banks, and Charles Natanson -- An introduction to survival analysis / Joanna H. Shih -- Measures of function and health-related quality of life / Lynn H. Gerber -- Economic analysis and clinical research / Martin L. Brown, Keven B. Knopf, Stephen E. Marcus, and Joseph Lipscomb -- Overview of technology development / Bruce Goldstein -- Technology transfer / James Clifford Haight -- Telemedicine systems / Kenneth M. Kempner, Frank S. Govern, and Robert Martino -- Animal models of human disease / Domenico Accili -- Conducting and evaluating clinical research on complementary and alternative medicine / Wayne B. Jonas and Klaus Linde -- Preparing scientific images for publication and display / Christopher Vargas -- Writing a clinical protocol: the mechanics / Eddie Reed and Antoinette Jones-Wells -- Getting the funding you need to support your research: successfully navigating the NIH peer review process for grants / Olivia T. Preble Bartlett and Elliot Postow.Table of contentshttp://catdir.loc.gov/catdir/toc/els031/2001096789.html

The Double-Edged Helix: Popular Narratives and Public Perceptions of Science, Nelkin, Dorothy , Accountability in Research: Policies & Quality Assurance, Volume 5, Issue 1-3, p.197, (1997) Abstract

Nelkin, Dorothy; Issue Info: Jan1997, Vol. 5 Issue 1-3, p197; Subject Term: GENETICS -- Social aspects; Subject Term: COMMUNICATION in science; Subject Term: MEDICAL jurisprudence; Number of Pages: 7p; Document Type: Article; Full Text Word Count: 3616