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Data-Sharing Dilemmas: Allowing Pharmaceutical Company Access to Research Data, Anderson, James R., and Schonfeld Toby L. , IRB: Ethics & Human Research, Volume 31, Issue 3, p.17-19, (2009) Abstract

Anderson, James R. 1 Schonfeld, Toby L. 2,3; Affiliation: 1: Department of Biostatistics, College of Public Health, University of Nebraska Medical Center,O maha, NE 2: Director, Center for Humanities, Ethics and Society, University of Nebraska Medical Center, Omaha, NE 3: Vice- Chair, Health Promotion, Social and Behavioral Health, College of Public Health, University of Nebraska Medical Center, Omaha, NE; Source Info: May/Jun2009, Vol. 31 Issue 3, p17; Subject Term: ACCESS to information; Subject Term: CLINICAL trials; Subject Term: INFORMED consent (Medical law); Subject Term: RESPECT for persons; Subject Term: PHARMACEUTICAL industry; Subject Term: MEDICAL informatics; Subject Term: MEDICINE -- Research; Subject Term: UNITED States; NAICS/Industry Codes: 541712 Reseach and Development in the Physical, Engineering, and Life Sciences (except Biotechnology); NAICS/Industry Codes: 325412 Pharmaceutical Preparation Manufacturing; Number of Pages: 3p; Document Type: Opinion

Voluntariness of Consent to Research : A Conceptual Model, Appelbaum, Paul S., Lidz Charles W., and Klitzman Robert , Hastings Center Report, Volume 39, Issue 1, p.30-39, (2009) Abstract

APPELBAUM, PAUL S. 1 LIDZ, CHARLES W. 2 KLITZMAN, ROBERT 3; Affiliation: 1: Elizabeth K. Dollard Professor of Psychiatry, Medicine and Law, College of Physicians and Surgeons, Columbia University 2: Research professor of psychiatry, University of Massachusetts Medical School 3: Associate professor of clinical psychiatry, College of Physicians and Surgeons, Mailman School of Public Health, Columbia University; Source Info: Jan2009, Vol. 39 Issue 1, p30; Subject Term: INFORMED consent (Medical law); Subject Term: HUMAN experimentation in medicine; Subject Term: MEDICAL ethics; Subject Term: MEDICAL care; Subject Term: RESEARCH; Subject Term: INFORMED consent (Law); Number of Pages: 10p; Document Type: Article

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A Choice of One's Own Research Advance Directives: Anticipatory Planning for Research Subjects, Backlar, Patricia , Accountability in Research: Policies & Quality Assurance, Volume 7, Issue 2-4, p.117, (1999) Abstract

Backlar, Patricia; Issue Info: Dec99, Vol. 7 Issue 2-4, p117; Thesaurus Term: RESEARCH; Subject Term: MORAL & ethical aspects; Subject Term: MENTALLY ill; Subject Term: INFORMED consent (Medical law); Number of Pages: 12p; Document Type: Article; Full Text Word Count: 4104

Informed Consent for Dementia Research: The Study Enrollment Encounter, Black, Betty S., Kass Nancy E., Fogarty Linda A., and Rabins Peter V. , IRB: Ethics & Human Research, Volume 29, Issue 4, p.7-14, (2007) Abstract

Black, Betty S. 1,2 Kass, Nancy E. 2,3 Fogarty, Linda A. 4 Rabins, Peter V. 2,5; Affiliation: 1: Assistant Professor of Psychiatry, Department of Psychiatry and Behavioral Sciences, Johns Hopkins School of Medicine, Johns Hopkins Bloomberg School of Public Health 2: Phoebe R. Berman Bioethics Institute, Johns Hopkins University, Baltimore, MD 3: Phoebe R. Berman Professor, Bioethics and Public Heath, Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health 4: Director, Results and Knowledge Management, JHPIEGO Corporation, Baltimore, MD 5: Professor of Psychiatry, Department of Psychiatry and Behavioral Sciences, Johns Hopkins School of Medicine, Johns Hopkins Bloomberg School of Public Health; Source Info: Jul/Aug2007, Vol. 29 Issue 4, p7; Subject Term: DEMENTIA; Subject Term: EPIDEMIOLOGY; Subject Term: OLDER people -- Diseases; Subject Term: NEUROBEHAVIORAL disorders; Subject Term: NERVOUS system -- Degeneration; Subject Term: INFORMED consent (Medical law); Subject Term: MEDICAL care; Subject Term: RESEARCH; Subject Term: UNITED States; Number of Pages: 8p; Document Type: Article

Shading the truth in seeking informed consent for research purposes., Bok, Sissela , Kennedy Institute of Ethics Journal, Mar, Volume 5, Issue 1, p.1-17, (1995) Abstract
The Expanding Purview: Institutional Review Boards and the Review of Human Subjects Research, Borenstein, Jason , Accountability in Research: Policies & Quality Assurance, Volume 15, Issue 3, p.188-204, (2008) Abstract

Borenstein, Jason 1; Email Address: jason.borenstein@pubpolicy.gatech.edu; Affiliations: 1: Graduate Research Ethics Programs, School of Public Policy, Georgia Tech, Atlanta, Georgia, USA; Issue Info: Jul-Sep2008, Vol. 15 Issue 3, p188; Thesaurus Term: RESEARCH; Subject Term: INSTITUTIONAL review boards (Medicine); Subject Term: FREEDOM of speech; Subject Term: HUMAN experimentation; Subject Term: RESEARCH subjects (Persons); Author-Supplied Keyword: human subjects research; Author-Supplied Keyword: informed consent; Author-Supplied Keyword: IRB; Author-Supplied Keyword: research ethics; Author-Supplied Keyword: self-censorship; Number of Pages: 17p; Document Type: Article

The Expanding Purview: Institutional Review Boards and the Review of Human Subjects Research, Borenstein, Jason , Accountability in Research: Policies & Quality Assurance, Volume 15, Issue 3, p.188-204, (2008) Abstract

Borenstein, Jason 1; Email Address: jason.borenstein@pubpolicy.gatech.edu; Affiliations: 1: Graduate Research Ethics Programs, School of Public Policy, Georgia Tech, Atlanta, Georgia, USA; Issue Info: Jul-Sep2008, Vol. 15 Issue 3, p188; Thesaurus Term: RESEARCH; Subject Term: INSTITUTIONAL review boards (Medicine); Subject Term: FREEDOM of speech; Subject Term: HUMAN experimentation; Subject Term: RESEARCH subjects (Persons); Author-Supplied Keyword: human subjects research; Author-Supplied Keyword: informed consent; Author-Supplied Keyword: IRB; Author-Supplied Keyword: research ethics; Author-Supplied Keyword: self-censorship; Number of Pages: 17p; Document Type: Article

In case of emergency: No need for consent, Brody, Baruch A., and Katz Jay , Hastings Center Report, Volume 27, Issue 1, p.7, (1997) Abstract

Brody, Baruch A. Katz, Jay; Source Info: Jan/Feb97, Vol. 27 Issue 1, p7; Subject Term: INFORMED consent (Medical law); Subject Term: MEDICINE -- Research; Subject Term: UNITED States; NAICS/Industry Codes: 541712 Reseach and Development in the Physical, Engineering, and Life Sciences (except Biotechnology); Number of Pages: 6p; Document Type: Article; Full Text Word Count: 5441

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The Issue of Consent in Research that Administers Drugs of Addiction to Addicted Persons, Carter, Adrian, and Hall Wayne , Accountability in Research: Policies & Quality Assurance, Volume 15, Issue 4, p.209-225, (2008) Abstract

Carter, Adrian 1; Email Address: adrian.carter@uq.edu.au; Hall, Wayne 2; Affiliations: 1: The University of Queensland, Queensland Brain Institute and the Department of Philosophy, Queensland, Australia; 2: School of Population Health, The University of Queensland, Queensland, Australia; Issue Info: Oct-Dec2008, Vol. 15 Issue 4, p209; Thesaurus Term: RESEARCH; Thesaurus Term: DECISION making; Subject Term: DRUG addiction; Subject Term: CONSENT (Law); Subject Term: ADDICTS; Subject Term: SCIENCE -- Experiments; Author-Supplied Keyword: addiction; Author-Supplied Keyword: addiction research; Author-Supplied Keyword: informed consent; Author-Supplied Keyword: neuroethics; Author-Supplied Keyword: research ethics; Number of Pages: 17p; Document Type: Article

The Issue of Consent in Research that Administers Drugs of Addiction to Addicted Persons, Carter, Adrian, and Hall Wayne , Accountability in Research: Policies & Quality Assurance, Volume 15, Issue 4, p.209-225, (2008) Abstract

Carter, Adrian 1; Email Address: adrian.carter@uq.edu.au; Hall, Wayne 2; Affiliations: 1: The University of Queensland, Queensland Brain Institute and the Department of Philosophy, Queensland, Australia; 2: School of Population Health, The University of Queensland, Queensland, Australia; Issue Info: Oct-Dec2008, Vol. 15 Issue 4, p209; Thesaurus Term: RESEARCH; Thesaurus Term: DECISION making; Subject Term: DRUG addiction; Subject Term: CONSENT (Law); Subject Term: ADDICTS; Subject Term: SCIENCE -- Experiments; Author-Supplied Keyword: addiction; Author-Supplied Keyword: addiction research; Author-Supplied Keyword: informed consent; Author-Supplied Keyword: neuroethics; Author-Supplied Keyword: research ethics; Number of Pages: 17p; Document Type: Article

Seeking Informed Consent: Reflections on Research Practice, Chih Hoong, Sin , Sociology, Volume 39, Issue 2, p.277-294, (2005) Abstract

Chih Hoong Sin 1; Email Address: Chin.HoongSin@matrixrcl.co.uk; Affiliation: 1: Matrix Research and Consultancy Ltd.; Source Info: Apr2005, Vol. 39 Issue 2, p277; Subject Term: RITUALISM; Subject Term: CONSENT (Law); Subject Term: PROFESSIONAL ethics; Subject Term: RESEARCH teams; Subject Term: MEDICAL care; Subject Term: RITES & ceremonies; Author-Supplied Keyword: ethics; Author-Supplied Keyword: informed consent; Author-Supplied Keyword: mixed method; Author-Supplied Keyword: reflexive.; Number of Pages: 18p; Document Type: Article

So What Are We Going to Do about Research Using Clinical Information and Samples?, Clayton, Ellen Wright , IRB: Ethics & Human Research, Volume 26, p.14-15, (2004) Abstract

6Accession Number: 15109636; Clayton, Ellen Wright 1; Affiliation: 1: Rosalind E. Franklin Professor of Genetics and Health Policy and Director of Genetics and Health Policy Center, Vanderbilt University; Source Info: Nov/Dec2004, Vol. 26 Issue 6, p14; Subject Term: INFORMED consent (Medical law); Subject Term: MEDICAL ethics; Subject Term: MEDICAL laws & legislation; Subject Term: MEDICAL care; Subject Term: MEDICAL records; Subject Term: PATIENTS; Subject Term: MEDICAL informatics; Number of Pages: 2p; Document Type: Editorial

Studying Racial Bias, Connor, Jane Marantz , 03/2000, (2000) Abstract

Case from the National Center for Case Study Teaching in Science, University of Buffalo. http://sciencecases.lib.buffalo.edu/cs/

Donation of Tissue Samples, Cox-White, Becky, Connolly Peggy, Englehardt Elaine, Hinman Lawrence, Ladenson Robert, and Leever Martin , (2001) Abstract

Case from the 2001 APPE National Ethics Bowl Championship. Copyright, Association for Practical and Professional Ethics, 2001. http://www.indiana.edu/~appe/ethicsbowl.html

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Ethics Review of Social, Behavioral, and Economic Research: Where Should We Go From Here?, De Vries, Raymond, DeBruin Debra A., and Goodgame Andrew , Ethics & Behavior, Volume 14, Issue 4, p.351-368, (2004) Abstract

De Vries, Raymond 1; Email Address: devries@umn.edu DeBruin, Debra A. 1 Goodgame, Andrew 2; Affiliation: 1: Center for Bioethics, University of Minnesota 2: Chico State University, California; Source Info: Oct2004, Vol. 14 Issue 4, p351; Subject Term: RESEARCH -- Moral & ethical aspects; Subject Term: BEHAVIORAL assessment; Subject Term: LEGISLATIVE oversight; Subject Term: SOCIAL scientists; Subject Term: PROFESSIONAL ethics; Subject Term: CONFLICT of interests; Author-Supplied Keyword: behavioral health research; Author-Supplied Keyword: informed consent.; Author-Supplied Keyword: institutional review boards; Author-Supplied Keyword: research ethics; Number of Pages: 18p; Illustrations: 5 graphs; Document Type: Article

Ethics in Population-Based Genetic Research, DeCamp, Matthew, and Sugarman Jeremy , Accountability in Research: Policies & Quality Assurance, Volume 11, Issue 1, p.1-26, (2004) Abstract

DeCamp, Matthew 1; Sugarman, Jeremy 2; Email Address: jsugar1@jhmi.edu; Affiliations: 1: Duke University Medical Scientist Training Program School of Medicine and Department of Philosophy Durham, North Carolina, USA.; 2: Phoebe R. Berman Bioethics Institute Johns Hopkins University Baltimore, Maryland, USA.; Issue Info: Jan2004, Vol. 11 Issue 1, p1; Thesaurus Term: RESEARCH; Thesaurus Term: HUMAN services; Subject Term: GENETICS; Subject Term: POPULATION research; Subject Term: EPIDEMIOLOGY; Subject Term: MEDICINE -- Study & teaching; Subject Term: PUBLIC health; Author-Supplied Keyword: ethics, population genetics, genetics research, informed consent, research standards, research subjects; NAICS/Industry Codes: 525120 Health and Welfare Funds; Number of Pages: 26p; Document Type: Article

Excluding Particular Information From Consent Forms, Dickert, Neal, Kass Nancy E., Paasche-Orlow Michael, and Taylor Holly , Accountability in Research: Policies & Quality Assurance, Volume 12, Issue 1, p.33-45, (2005) Abstract

Dickert, Neal 1; Email Address: ndicker@jhmi.edu; Kass, Nancy 2; Paasche-Orlow, Michael 3; Taylor, Holly 4; Affiliations: 1: Department of Health Policy and Management Bloomberg School of Public Health and Phoebe R. Berman Bioethics Institute, John Hopkins University.; 2: Phoebe R. Berman Professor of Bioehtics and Public Health, Department of Health and Policy and Management Bloomberg School of Public Health and Phoebe R. Berman Bioethics Institute, John Hopkins University.; 3: Assistant Professor, Department of Medicine, Boston University, School of Medicine.; 4: Assistant Professor, Department of Health Policy and Management Bloomberg School of Public Health and Phoebe R. Berman Bioethics Institute, Johns Hopkins Universtiy.; Issue Info: Jan-Mar2005, Vol. 12 Issue 1, p33; Thesaurus Term: MEDICAL laws & legislation; Thesaurus Term: CONFIDENTIAL communications; Thesaurus Term: MEDICAL care; Subject Term: INFORMED consent (Medical law); Subject Term: CONSENT (Law); Subject Term: MEDICAL ethics; Author-Supplied Keyword: confidentiality; Author-Supplied Keyword: consent form; Author-Supplied Keyword: ethics; Author-Supplied Keyword: human subjects research; Author-Supplied Keyword: informed consent; Author-Supplied Keyword: international research; Number of Pages: 13p; Document Type: Article

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Is Longer Always Better?, Emanuel, Ezekiel J., and Grady Christine , Hastings Center Report, Volume 38, p.10-11, (2008) Abstract

3Accession Number: 32727108; Emanuel, Ezekiel J. Grady, Christine; Source Info: May/Jun2008, Vol. 38 Issue 3, p10; Subject Term: EDITORIALS; Subject Term: INSTITUTIONAL review boards (Medicine); Subject Term: INFORMED consent (Medical law); Subject Term: HUMAN experimentation in medicine; Subject Term: MEDICINE -- Research; NAICS/Industry Codes: 519110 News Syndicates; NAICS/Industry Codes: 541712 Reseach and Development in the Physical, Engineering, and Life Sciences (except Biotechnology); Number of Pages: 2p; Document Type: Editorial