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Informed consent in the Childrens Cancer Group: results of preliminary research.


By KBL781 - Posted on 14 September 2009

TitleInformed consent in the Childrens Cancer Group: results of preliminary research.
Publication TypeJournal Article
Year of Publication1998
AuthorsKodish, ED, Pentz RD, Noll RB, Ruccione K., Buckley J., and Lange BJ
JournalCancer
Volume82
Issue12
Pagination2467-81
Date Published06/1998
Publication Languageeng
ISBN Number0008-543X
Accession Number9635541
KeywordsAdult; , as , Child; , Clinical , Collection; , Comprehension; , Consent , Consent; , Data , Disclosure; , ethics , Ethics, , Female; , Forms; , Humans; , Informed , Male; , Medical , Medical; , Oncology; , Parent-Child , Parental , patient , Pediatrics; , Physi , Relations; , Satisfaction; , Topic; , trials
Abstract

The authors of this article studied the informed consent process and parents' and physicians reactions to this process at Children's Cancer Centers around the United States. Of parents interviewed about the informed consensus project, the majority foudn the process informative but rather confusing, but found conversations with staff more helpful than the consent documents. Only 13% of the parents said that too much information was given. In comparison, clinician responses showed that they felt that often too much information was given during the consent process. The also believed that enrollment in studies is generally good for children, and the major obstacle keeping children from participating in studies is the parents "state of shock."

URLClick here for the document
DOI10.1002/(SICI)1097-0142(19980615)82
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