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Informed consent in the Childrens Cancer Group: results of preliminary research.
|Title||Informed consent in the Childrens Cancer Group: results of preliminary research.|
|Publication Type||Journal Article|
|Year of Publication||1998|
|Authors||Kodish, ED, Pentz RD, Noll RB, Ruccione K., Buckley J., and Lange BJ|
|Keywords||Adult; , as , Child; , Clinical , Collection; , Comprehension; , Consent , Consent; , Data , Disclosure; , ethics , Ethics, , Female; , Forms; , Humans; , Informed , Male; , Medical , Medical; , Oncology; , Parent-Child , Parental , patient , Pediatrics; , Physi , Relations; , Satisfaction; , Topic; , trials|
The authors of this article studied the informed consent process and parents' and physicians reactions to this process at Children's Cancer Centers around the United States. Of parents interviewed about the informed consensus project, the majority foudn the process informative but rather confusing, but found conversations with staff more helpful than the consent documents. Only 13% of the parents said that too much information was given. In comparison, clinician responses showed that they felt that often too much information was given during the consent process. The also believed that enrollment in studies is generally good for children, and the major obstacle keeping children from participating in studies is the parents "state of shock."
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