The Genetic Information Non-Discrimination Act : Should It Be Passed ? A Case Study

TitleThe Genetic Information Non-Discrimination Act : Should It Be Passed ? A Case Study
Publication TypeCase Study
Year of Publication2009
AuthorsChang, Y, Nserko, N, Pearson, T, Smith, S
Corporate AuthorsIowa State University, Bioethics Program,
Pagination84 p.
Date Published06/2009
PublisherIowa State University
Publication LanguageEnglish
KeywordsBIOETHICS , GENETICS , HUMAN rights , Public Policy
AbstractThe Genetic Information Non-Discrimination Act (GINA), also known as H.R. 493, aims to protect individuals’ rights to non-discrimination (in insurance and employment) on the basis of personal genetic information. With the mapping of the human genome in 2003, and the subsequent identification of genes and markers for a multitude of diseases and conditions, concern has grown over the issue of insurance company or employer access to individual genetic information, with strong opinions being voiced on either side of the issue. Interested parties have argued that GINA needs to be implemented as it stands, while others say that the bill needs overhauled before it should be passed because it is too vague. Public opinion also varies on this topic. Your assignment is to address the House of Representatives and advise either for them to support the bill as-is, or advocate what revisions, amendments or additions should be made to it before passing.
URLhttp://www.public.iastate.edu/~ethics/GINA.pdf
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