<?xml version="1.0" encoding="UTF-8"?><xml><records><record><source-app name="Biblio" version="6.x">Drupal-Biblio</source-app><rec-number>6926</rec-number><ref-type>Journal Article</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Helgesson, Gert</style></author><author><style face="normal" font="default" size="100%">Eriksson, Stefan</style></author><author><style face="normal" font="default" size="100%">Swartling, Ulrica</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Limited Relevance of the Right Not to Know - Reflections on a Screening Study</style></title><secondary-title><style face="normal" font="default" size="100%">Accountability in Research: Policies &amp; Quality Assurance</style></secondary-title><short-title><style face="normal" font="default" size="100%">Limited Relevance of the Right Not to Know - Reflections on a Screening Study</style></short-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">Autonomy</style></keyword><keyword><style  face="normal" font="default" size="100%">BIOETHICS</style></keyword><keyword><style  face="normal" font="default" size="100%">children</style></keyword><keyword><style  face="normal" font="default" size="100%">DIABETES</style></keyword><keyword><style  face="normal" font="default" size="100%">HEALTH</style></keyword><keyword><style  face="normal" font="default" size="100%">Human</style></keyword><keyword><style  face="normal" font="default" size="100%">Human Research Subjects</style></keyword><keyword><style  face="normal" font="default" size="100%">Informed Consent</style></keyword><keyword><style  face="normal" font="default" size="100%">Medical</style></keyword><keyword><style  face="normal" font="default" size="100%">MEDICINE</style></keyword><keyword><style  face="normal" font="default" size="100%">population</style></keyword><keyword><style  face="normal" font="default" size="100%">Right</style></keyword></keywords><taxonomies><taxonomy><style  face="normal" font="default" size="100%">Informed Consent</style></taxonomy><taxonomy><style  face="normal" font="default" size="100%">Human Research Subjects</style></taxonomy><taxonomy><style  face="normal" font="default" size="100%">Medicine</style></taxonomy></taxonomies><pubtype><style  face="normal" font="default" size="100%">Journal Article</style></pubtype><audience-level><style  face="normal" font="default" size="100%">ug</style></audience-level><dates><year><style  face="normal" font="default" size="100%">2007</style></year></dates><volume><style face="normal" font="default" size="100%">14</style></volume><pages><style face="normal" font="default" size="100%">197-209</style></pages><issn><style face="normal" font="default" size="100%">08989621</style></issn><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">The right not to know personal health-related information has been included in prominent human rights documents and subsequently in national legislation since the middle of the 1990s. This article argues against giving the right not to know such a prominent position. The main focus of the article is on empirical data from a prospective population screening for Type 1 diabetes. Data indicate that research participants are not as autonomous as is generally assumed by the defenders of the right not to know. </style></abstract><doi><style face="normal" font="default" size="100%">10.1080/08989620701456322</style></doi><issue><style face="normal" font="default" size="100%">3</style></issue><work-type><style face="normal" font="default" size="100%">Article</style></work-type><accession-num><style face="normal" font="default" size="100%">25727403</style></accession-num><notes><style face="normal" font="default" size="100%">Helgesson, Gert 1; Email Address: gert.helgesson@bioethics.uu.se; Eriksson, Stefan 1; Swartling, Ulrica 2; Affiliations: 1: Centre for Bioethics at Karolinska Institutet and Uppsala University. Uppsala. Sweden; 2: The ABIS Research Group, Division of Paediatrics and Diabetes Research Centre, Department of Molecular and Clinical Medicine, Faculty of Health Sciences, Linköping University. Linköping. Sweden; Issue Info: Jul-Sep2007, Vol. 14 Issue 3, p197; Subject Term: HUMAN rights; Subject Term: HEALTH; Subject Term: DIABETES; Subject Term: MEDICAL screening; Subject Term: BIOETHICS; Author-Supplied Keyword: autonomy; Author-Supplied Keyword: children; Author-Supplied Keyword: health; Author-Supplied Keyword: population screening; Author-Supplied Keyword: right not to know; NAICS/Industry Codes: 621999 All Other Miscellaneous Ambulatory Health Care Services; Number of Pages: 13p; Illustrations: 1 Chart; Document Type: Article</style></notes></record></records></xml>