Creating a Public Archive of Sensitive Data

TitleCreating a Public Archive of Sensitive Data
Publication TypeCase Study
Year of Publication2013
AuthorsDuBois, JM
Corporate AuthorsUnited States, Office of Public Health and Science, Office of Research Integrity
Date Published10/2013
PublisherUnited States, Department of Health and Human Services, Office of Research Integrity
KeywordsConfidentiality , data management , MEDICINE , SCIENCE
AbstractFrances is a researcher studying the molecular basis of cancer. She plans to sequence the genomes of children with cancer, and make this sequencing data publicly available online. Keeping in mind how the data might be used in the future and what this data might reveal about the research subjects, how should Frances proceed?
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