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2005
Consent Forms and the Therapeutic Misconception: The Example of Gene Transfer Research, King, Nancy M. P., Henderson Gail E., Churchill Larry R., Davis Arlene M., Hull Sara Chandros, Nelson Daniel K., Christy Parham-Vetter P., Rothschild Barbra Bluestone, Easter Michele M., and Wilfond Benjamin S. , IRB: Ethics & Human Research, Volume 27, Issue 1, p.1-8, (2005) Abstract

King, Nancy M. P. Henderson, Gail E. Churchill, Larry R. Davis, Arlene M. Hull, Sara Chandros Nelson, Daniel K. Christy Parham-Vetter, P. Rothschild, Barbra Bluestone Easter, Michele M. Wilfond, Benjamin S.; Source Info: Jan/Feb2005, Vol. 27 Issue 1, p1; Subject Term: INFORMED consent (Medical law); Subject Term: GENETICS -- Research; Subject Term: CLINICAL trials; Subject Term: MEDICAL misconceptions; Subject Term: MEDICAL errors; Subject Term: PATIENTS; Subject Term: CLINICAL medicine -- Research; Number of Pages: 8p; Document Type: Article

2004
Genetic Research Involving Human Biological Materials: A Need to Tailor Consent Forms, Hull, Sara Chandros, Gooding Holly, Klein Alison P., Warshauer-Baker Esther, Metosky Susan, and Wilfond Benjamin S. , IRB: Ethics & Human Research, Volume 26, Issue 3, p.1-7, (2004) Abstract

Hull, Sara Chandros 1 Gooding, Holly 2 Klein, Alison P. 3 Warshauer-Baker, Esther 4 Metosky, Susan 5 Wilfond, Benjamin S. 6; Affiliation: 1: Head of Research Ethics Section, Social and Behavioral Research Branch, National Human Genome Research Institute, NIH. 2: University of California San Francisco. 3: Research Fellow, Statistical Genetics Section of Inherited Disease Research Branch, NHGRI, NIH. 4: Postbaccalaureate Fellow, Social and Behavioral Branch, NHGRI, NIH. 5: Research Compliance Coordinator, Old Dominion University. 6: Head of Bioethics and Social Policy Section, Social and Behavioral Research Branch, NHGRI, NIH.; Source Info: May/Jun2004, Vol. 26 Issue 3, p1; Subject Term: GENETICS -- Research; Subject Term: HUMAN experimentation in medicine; Subject Term: INSTITUTIONAL review boards (Medicine); Subject Term: DECISION making; Subject Term: PROBLEM solving; Subject Term: MEDICAL ethics committees; Number of Pages: 7p; Document Type: Article

Recruitment Approaches for Family Studies: Attitudes of Index Patients and Their Relatives, Hull, Sara Chandros, Glanz Karen, Steffen Alana, and Wilfond Benjamin S. , IRB: Ethics & Human Research, Volume 26, Issue 4, p.12-18, (2004) Abstract

Hull, Sara Chandros Glanz, Karen Steffen, Alana Wilfond, Benjamin S.; Source Info: Jul/Aug2004, Vol. 26 Issue 4, p12; Subject Term: RESEARCH; Subject Term: FAMILIES; Subject Term: SYMPTOMS; Subject Term: DISEASES; Subject Term: QUALITY of life; Subject Term: DNA; Subject Term: UNITED States; Number of Pages: 7p; Document Type: Article