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VALUES
Cosmetic Surgery in Children with Cognitive Disabilities: Who Benefits? Who Decides?, Opel, Douglas J., and Wilfond Benjamin S. , Hastings Center Report, Volume 39, Issue 1, p.19-21, (2009) Abstract

Hastings Center ReportAccession Number: 36292679; OPEL, DOUGLAS J 1,2 WILFOND, BENJAMIN S. 3,4; Affiliation: 1: Fellow, Treuman Katz Center for Pediatric Bioethics, Seattle Children's Center 2: Acting instructor of pediatrics, University of Washington School of Medicine 3: Treuman Katz Center for Pediatric Bioethics, Seattle Children's Center 4: Professor of pediatrics, University of Washington; Source Info: Jan2009, Vol. 39 Issue 1, p19; Subject Term: ESSAY (Literary form); Subject Term: SURGERY, Plastic; Subject Term: COGNITION disorders in children; Subject Term: VALUES; Subject Term: ETHICS; Subject Term: DEVELOPMENTAL disabilities; Number of Pages: 3p; Document Type: Essay

United
Recruitment Approaches for Family Studies: Attitudes of Index Patients and Their Relatives, Hull, Sara Chandros, Glanz Karen, Steffen Alana, and Wilfond Benjamin S. , IRB: Ethics & Human Research, Volume 26, Issue 4, p.12-18, (2004) Abstract

Hull, Sara Chandros Glanz, Karen Steffen, Alana Wilfond, Benjamin S.; Source Info: Jul/Aug2004, Vol. 26 Issue 4, p12; Subject Term: RESEARCH; Subject Term: FAMILIES; Subject Term: SYMPTOMS; Subject Term: DISEASES; Subject Term: QUALITY of life; Subject Term: DNA; Subject Term: UNITED States; Number of Pages: 7p; Document Type: Article

The Genetic Information Nondiscrimination Act: Fear Factor or Fantasy Island?, Wilfond, Benjamin S. , Hastings Center Report, Volume 38, Issue 6, p.11-12, (2008) Abstract

6Accession Number: 35602039; Wilfond, Benjamin S.; Source Info: Nov/Dec2008, Vol. 38 Issue 6, p11; Subject Term: EDITORIALS; Subject Term: DISCRIMINATION -- Law & legislation; Subject Term: GENETICS; Subject Term: DISCRIMINATION in insurance; Subject Term: DISCRIMINATION in employment; Subject Term: UNITED States; NAICS/Industry Codes: 519110 News Syndicates; Number of Pages: 2p; Document Type: Editorial

Screening policy for cystic fibrosis: The role of evidence, Wilfond, Benjamin S. , Hastings Center Report, Volume 25, Issue 3, p.S21-S23, (1995) Abstract

Wilfond, Benjamin S.; Source Info: May/Jun95, Vol. 25 Issue 3, pS21; Subject Term: CYSTIC fibrosis; Subject Term: DIAGNOSIS; Subject Term: LAW & legislation; Subject Term: UNITED States; Number of Pages: 3p; Document Type: Article; Full Text Word Count: 2291

Points to Consider: The Research Ethics Consultation Service and the IRB, Beskow, Laura M., Grady Christine, Iltis Ana S., Sadler John Z., and Wilfond Benjamin S. , IRB: Ethics & Human Research, Volume 31, Issue 6, p.1-9, (2009) Abstract

Beskow, Laura M. Grady, Christine Iltis, Ana S. Sadler, John Z. Wilfond, Benjamin S.; Source Info: Nov2009, Vol. 31 Issue 6, p1; Subject Term: INSTITUTIONAL review boards (Medicine); Subject Term: RESEARCH -- Moral & ethical aspects; Subject Term: PROFESSIONAL ethics; Subject Term: MEDICAL consultation; Subject Term: STANDARDIZATION; Subject Term: UNITED States; Company/Entity: NATIONAL Institutes of Health (U.S.); Number of Pages: 9p; Illustrations: 3 Charts; Document Type: Article

SYMPTOMS
Recruitment Approaches for Family Studies: Attitudes of Index Patients and Their Relatives, Hull, Sara Chandros, Glanz Karen, Steffen Alana, and Wilfond Benjamin S. , IRB: Ethics & Human Research, Volume 26, Issue 4, p.12-18, (2004) Abstract

Hull, Sara Chandros Glanz, Karen Steffen, Alana Wilfond, Benjamin S.; Source Info: Jul/Aug2004, Vol. 26 Issue 4, p12; Subject Term: RESEARCH; Subject Term: FAMILIES; Subject Term: SYMPTOMS; Subject Term: DISEASES; Subject Term: QUALITY of life; Subject Term: DNA; Subject Term: UNITED States; Number of Pages: 7p; Document Type: Article

SURGERY
Cosmetic Surgery in Children with Cognitive Disabilities: Who Benefits? Who Decides?, Opel, Douglas J., and Wilfond Benjamin S. , Hastings Center Report, Volume 39, Issue 1, p.19-21, (2009) Abstract

Hastings Center ReportAccession Number: 36292679; OPEL, DOUGLAS J 1,2 WILFOND, BENJAMIN S. 3,4; Affiliation: 1: Fellow, Treuman Katz Center for Pediatric Bioethics, Seattle Children's Center 2: Acting instructor of pediatrics, University of Washington School of Medicine 3: Treuman Katz Center for Pediatric Bioethics, Seattle Children's Center 4: Professor of pediatrics, University of Washington; Source Info: Jan2009, Vol. 39 Issue 1, p19; Subject Term: ESSAY (Literary form); Subject Term: SURGERY, Plastic; Subject Term: COGNITION disorders in children; Subject Term: VALUES; Subject Term: ETHICS; Subject Term: DEVELOPMENTAL disabilities; Number of Pages: 3p; Document Type: Essay

STANDARDIZATION
Points to Consider: The Research Ethics Consultation Service and the IRB, Beskow, Laura M., Grady Christine, Iltis Ana S., Sadler John Z., and Wilfond Benjamin S. , IRB: Ethics & Human Research, Volume 31, Issue 6, p.1-9, (2009) Abstract

Beskow, Laura M. Grady, Christine Iltis, Ana S. Sadler, John Z. Wilfond, Benjamin S.; Source Info: Nov2009, Vol. 31 Issue 6, p1; Subject Term: INSTITUTIONAL review boards (Medicine); Subject Term: RESEARCH -- Moral & ethical aspects; Subject Term: PROFESSIONAL ethics; Subject Term: MEDICAL consultation; Subject Term: STANDARDIZATION; Subject Term: UNITED States; Company/Entity: NATIONAL Institutes of Health (U.S.); Number of Pages: 9p; Illustrations: 3 Charts; Document Type: Article

research
Points to Consider: The Research Ethics Consultation Service and the IRB, Beskow, Laura M., Grady Christine, Iltis Ana S., Sadler John Z., and Wilfond Benjamin S. , IRB: Ethics & Human Research, Volume 31, Issue 6, p.1-9, (2009) Abstract

Beskow, Laura M. Grady, Christine Iltis, Ana S. Sadler, John Z. Wilfond, Benjamin S.; Source Info: Nov2009, Vol. 31 Issue 6, p1; Subject Term: INSTITUTIONAL review boards (Medicine); Subject Term: RESEARCH -- Moral & ethical aspects; Subject Term: PROFESSIONAL ethics; Subject Term: MEDICAL consultation; Subject Term: STANDARDIZATION; Subject Term: UNITED States; Company/Entity: NATIONAL Institutes of Health (U.S.); Number of Pages: 9p; Illustrations: 3 Charts; Document Type: Article

Recruitment Approaches for Family Studies: Attitudes of Index Patients and Their Relatives, Hull, Sara Chandros, Glanz Karen, Steffen Alana, and Wilfond Benjamin S. , IRB: Ethics & Human Research, Volume 26, Issue 4, p.12-18, (2004) Abstract

Hull, Sara Chandros Glanz, Karen Steffen, Alana Wilfond, Benjamin S.; Source Info: Jul/Aug2004, Vol. 26 Issue 4, p12; Subject Term: RESEARCH; Subject Term: FAMILIES; Subject Term: SYMPTOMS; Subject Term: DISEASES; Subject Term: QUALITY of life; Subject Term: DNA; Subject Term: UNITED States; Number of Pages: 7p; Document Type: Article

quality
Recruitment Approaches for Family Studies: Attitudes of Index Patients and Their Relatives, Hull, Sara Chandros, Glanz Karen, Steffen Alana, and Wilfond Benjamin S. , IRB: Ethics & Human Research, Volume 26, Issue 4, p.12-18, (2004) Abstract

Hull, Sara Chandros Glanz, Karen Steffen, Alana Wilfond, Benjamin S.; Source Info: Jul/Aug2004, Vol. 26 Issue 4, p12; Subject Term: RESEARCH; Subject Term: FAMILIES; Subject Term: SYMPTOMS; Subject Term: DISEASES; Subject Term: QUALITY of life; Subject Term: DNA; Subject Term: UNITED States; Number of Pages: 7p; Document Type: Article

Public Policy
The Genetic Information Nondiscrimination Act: Fear Factor or Fantasy Island?, Wilfond, Benjamin S. , Hastings Center Report, Volume 38, Issue 6, p.11-12, (2008) Abstract

6Accession Number: 35602039; Wilfond, Benjamin S.; Source Info: Nov/Dec2008, Vol. 38 Issue 6, p11; Subject Term: EDITORIALS; Subject Term: DISCRIMINATION -- Law & legislation; Subject Term: GENETICS; Subject Term: DISCRIMINATION in insurance; Subject Term: DISCRIMINATION in employment; Subject Term: UNITED States; NAICS/Industry Codes: 519110 News Syndicates; Number of Pages: 2p; Document Type: Editorial

professional
Points to Consider: The Research Ethics Consultation Service and the IRB, Beskow, Laura M., Grady Christine, Iltis Ana S., Sadler John Z., and Wilfond Benjamin S. , IRB: Ethics & Human Research, Volume 31, Issue 6, p.1-9, (2009) Abstract

Beskow, Laura M. Grady, Christine Iltis, Ana S. Sadler, John Z. Wilfond, Benjamin S.; Source Info: Nov2009, Vol. 31 Issue 6, p1; Subject Term: INSTITUTIONAL review boards (Medicine); Subject Term: RESEARCH -- Moral & ethical aspects; Subject Term: PROFESSIONAL ethics; Subject Term: MEDICAL consultation; Subject Term: STANDARDIZATION; Subject Term: UNITED States; Company/Entity: NATIONAL Institutes of Health (U.S.); Number of Pages: 9p; Illustrations: 3 Charts; Document Type: Article

PROBLEM
Genetic Research Involving Human Biological Materials: A Need to Tailor Consent Forms, Hull, Sara Chandros, Gooding Holly, Klein Alison P., Warshauer-Baker Esther, Metosky Susan, and Wilfond Benjamin S. , IRB: Ethics & Human Research, Volume 26, Issue 3, p.1-7, (2004) Abstract

Hull, Sara Chandros 1 Gooding, Holly 2 Klein, Alison P. 3 Warshauer-Baker, Esther 4 Metosky, Susan 5 Wilfond, Benjamin S. 6; Affiliation: 1: Head of Research Ethics Section, Social and Behavioral Research Branch, National Human Genome Research Institute, NIH. 2: University of California San Francisco. 3: Research Fellow, Statistical Genetics Section of Inherited Disease Research Branch, NHGRI, NIH. 4: Postbaccalaureate Fellow, Social and Behavioral Branch, NHGRI, NIH. 5: Research Compliance Coordinator, Old Dominion University. 6: Head of Bioethics and Social Policy Section, Social and Behavioral Research Branch, NHGRI, NIH.; Source Info: May/Jun2004, Vol. 26 Issue 3, p1; Subject Term: GENETICS -- Research; Subject Term: HUMAN experimentation in medicine; Subject Term: INSTITUTIONAL review boards (Medicine); Subject Term: DECISION making; Subject Term: PROBLEM solving; Subject Term: MEDICAL ethics committees; Number of Pages: 7p; Document Type: Article

Privacy and Surveillance
The Genetic Information Nondiscrimination Act: Fear Factor or Fantasy Island?, Wilfond, Benjamin S. , Hastings Center Report, Volume 38, Issue 6, p.11-12, (2008) Abstract

6Accession Number: 35602039; Wilfond, Benjamin S.; Source Info: Nov/Dec2008, Vol. 38 Issue 6, p11; Subject Term: EDITORIALS; Subject Term: DISCRIMINATION -- Law & legislation; Subject Term: GENETICS; Subject Term: DISCRIMINATION in insurance; Subject Term: DISCRIMINATION in employment; Subject Term: UNITED States; NAICS/Industry Codes: 519110 News Syndicates; Number of Pages: 2p; Document Type: Editorial

PLASTIC
Cosmetic Surgery in Children with Cognitive Disabilities: Who Benefits? Who Decides?, Opel, Douglas J., and Wilfond Benjamin S. , Hastings Center Report, Volume 39, Issue 1, p.19-21, (2009) Abstract

Hastings Center ReportAccession Number: 36292679; OPEL, DOUGLAS J 1,2 WILFOND, BENJAMIN S. 3,4; Affiliation: 1: Fellow, Treuman Katz Center for Pediatric Bioethics, Seattle Children's Center 2: Acting instructor of pediatrics, University of Washington School of Medicine 3: Treuman Katz Center for Pediatric Bioethics, Seattle Children's Center 4: Professor of pediatrics, University of Washington; Source Info: Jan2009, Vol. 39 Issue 1, p19; Subject Term: ESSAY (Literary form); Subject Term: SURGERY, Plastic; Subject Term: COGNITION disorders in children; Subject Term: VALUES; Subject Term: ETHICS; Subject Term: DEVELOPMENTAL disabilities; Number of Pages: 3p; Document Type: Essay

Patients
Consent Forms and the Therapeutic Misconception: The Example of Gene Transfer Research, King, Nancy M. P., Henderson Gail E., Churchill Larry R., Davis Arlene M., Hull Sara Chandros, Nelson Daniel K., Christy Parham-Vetter P., Rothschild Barbra Bluestone, Easter Michele M., and Wilfond Benjamin S. , IRB: Ethics & Human Research, Volume 27, Issue 1, p.1-8, (2005) Abstract

King, Nancy M. P. Henderson, Gail E. Churchill, Larry R. Davis, Arlene M. Hull, Sara Chandros Nelson, Daniel K. Christy Parham-Vetter, P. Rothschild, Barbra Bluestone Easter, Michele M. Wilfond, Benjamin S.; Source Info: Jan/Feb2005, Vol. 27 Issue 1, p1; Subject Term: INFORMED consent (Medical law); Subject Term: GENETICS -- Research; Subject Term: CLINICAL trials; Subject Term: MEDICAL misconceptions; Subject Term: MEDICAL errors; Subject Term: PATIENTS; Subject Term: CLINICAL medicine -- Research; Number of Pages: 8p; Document Type: Article

PARENTING
The Ashley Case: The Public Response and Policy Implications, Wilfond, Benjamin S. , Hastings Center Report, Volume 37, Issue 5, p.12-13, (2007) Abstract

5Accession Number: 26915754; Wilfond, Benjamin S.; Source Info: Sep2007, Vol. 37 Issue 5, p12; Subject Term: EDITORIALS; Subject Term: BIOETHICS; Subject Term: ETHICS committees; Subject Term: DECISION making; Subject Term: CHILDREN with disabilities -- Care; Subject Term: PARENTING; NAICS/Industry Codes: 519110 News Syndicates; Number of Pages: 2p; Document Type: Editorial

National
Points to Consider: The Research Ethics Consultation Service and the IRB, Beskow, Laura M., Grady Christine, Iltis Ana S., Sadler John Z., and Wilfond Benjamin S. , IRB: Ethics & Human Research, Volume 31, Issue 6, p.1-9, (2009) Abstract

Beskow, Laura M. Grady, Christine Iltis, Ana S. Sadler, John Z. Wilfond, Benjamin S.; Source Info: Nov2009, Vol. 31 Issue 6, p1; Subject Term: INSTITUTIONAL review boards (Medicine); Subject Term: RESEARCH -- Moral & ethical aspects; Subject Term: PROFESSIONAL ethics; Subject Term: MEDICAL consultation; Subject Term: STANDARDIZATION; Subject Term: UNITED States; Company/Entity: NATIONAL Institutes of Health (U.S.); Number of Pages: 9p; Illustrations: 3 Charts; Document Type: Article

MEDICINE
The Genetic Information Nondiscrimination Act: Fear Factor or Fantasy Island?, Wilfond, Benjamin S. , Hastings Center Report, Volume 38, Issue 6, p.11-12, (2008) Abstract

6Accession Number: 35602039; Wilfond, Benjamin S.; Source Info: Nov/Dec2008, Vol. 38 Issue 6, p11; Subject Term: EDITORIALS; Subject Term: DISCRIMINATION -- Law & legislation; Subject Term: GENETICS; Subject Term: DISCRIMINATION in insurance; Subject Term: DISCRIMINATION in employment; Subject Term: UNITED States; NAICS/Industry Codes: 519110 News Syndicates; Number of Pages: 2p; Document Type: Editorial

Medical
Consent Forms and the Therapeutic Misconception: The Example of Gene Transfer Research, King, Nancy M. P., Henderson Gail E., Churchill Larry R., Davis Arlene M., Hull Sara Chandros, Nelson Daniel K., Christy Parham-Vetter P., Rothschild Barbra Bluestone, Easter Michele M., and Wilfond Benjamin S. , IRB: Ethics & Human Research, Volume 27, Issue 1, p.1-8, (2005) Abstract

King, Nancy M. P. Henderson, Gail E. Churchill, Larry R. Davis, Arlene M. Hull, Sara Chandros Nelson, Daniel K. Christy Parham-Vetter, P. Rothschild, Barbra Bluestone Easter, Michele M. Wilfond, Benjamin S.; Source Info: Jan/Feb2005, Vol. 27 Issue 1, p1; Subject Term: INFORMED consent (Medical law); Subject Term: GENETICS -- Research; Subject Term: CLINICAL trials; Subject Term: MEDICAL misconceptions; Subject Term: MEDICAL errors; Subject Term: PATIENTS; Subject Term: CLINICAL medicine -- Research; Number of Pages: 8p; Document Type: Article

Lethal Language, Lethal Decisions, Koogler, Tracy K., Wilfond Benjamin S., and Ross Lainie Friedman , Hastings Center Report, Volume 33, Issue 2, p.37-41, (2003) Abstract

Koogler, Tracy K. Wilfond, Benjamin S. Ross, Lainie Friedman; Source Info: Mar/Apr2003, Vol. 33 Issue 2, p37; Subject Term: GENETIC disorders in children; Subject Term: MEDICAL care; Subject Term: ETHICS; Number of Pages: 5p; Document Type: Article

Genetic Research Involving Human Biological Materials: A Need to Tailor Consent Forms, Hull, Sara Chandros, Gooding Holly, Klein Alison P., Warshauer-Baker Esther, Metosky Susan, and Wilfond Benjamin S. , IRB: Ethics & Human Research, Volume 26, Issue 3, p.1-7, (2004) Abstract

Hull, Sara Chandros 1 Gooding, Holly 2 Klein, Alison P. 3 Warshauer-Baker, Esther 4 Metosky, Susan 5 Wilfond, Benjamin S. 6; Affiliation: 1: Head of Research Ethics Section, Social and Behavioral Research Branch, National Human Genome Research Institute, NIH. 2: University of California San Francisco. 3: Research Fellow, Statistical Genetics Section of Inherited Disease Research Branch, NHGRI, NIH. 4: Postbaccalaureate Fellow, Social and Behavioral Branch, NHGRI, NIH. 5: Research Compliance Coordinator, Old Dominion University. 6: Head of Bioethics and Social Policy Section, Social and Behavioral Research Branch, NHGRI, NIH.; Source Info: May/Jun2004, Vol. 26 Issue 3, p1; Subject Term: GENETICS -- Research; Subject Term: HUMAN experimentation in medicine; Subject Term: INSTITUTIONAL review boards (Medicine); Subject Term: DECISION making; Subject Term: PROBLEM solving; Subject Term: MEDICAL ethics committees; Number of Pages: 7p; Document Type: Article

Points to Consider: The Research Ethics Consultation Service and the IRB, Beskow, Laura M., Grady Christine, Iltis Ana S., Sadler John Z., and Wilfond Benjamin S. , IRB: Ethics & Human Research, Volume 31, Issue 6, p.1-9, (2009) Abstract

Beskow, Laura M. Grady, Christine Iltis, Ana S. Sadler, John Z. Wilfond, Benjamin S.; Source Info: Nov2009, Vol. 31 Issue 6, p1; Subject Term: INSTITUTIONAL review boards (Medicine); Subject Term: RESEARCH -- Moral & ethical aspects; Subject Term: PROFESSIONAL ethics; Subject Term: MEDICAL consultation; Subject Term: STANDARDIZATION; Subject Term: UNITED States; Company/Entity: NATIONAL Institutes of Health (U.S.); Number of Pages: 9p; Illustrations: 3 Charts; Document Type: Article

Legal Issues
The Genetic Information Nondiscrimination Act: Fear Factor or Fantasy Island?, Wilfond, Benjamin S. , Hastings Center Report, Volume 38, Issue 6, p.11-12, (2008) Abstract

6Accession Number: 35602039; Wilfond, Benjamin S.; Source Info: Nov/Dec2008, Vol. 38 Issue 6, p11; Subject Term: EDITORIALS; Subject Term: DISCRIMINATION -- Law & legislation; Subject Term: GENETICS; Subject Term: DISCRIMINATION in insurance; Subject Term: DISCRIMINATION in employment; Subject Term: UNITED States; NAICS/Industry Codes: 519110 News Syndicates; Number of Pages: 2p; Document Type: Editorial

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